It is so hard at this time - you think you may just be getting your head around a diagnosis and then it changes... As trite as it may sound, until you know you don't really know so do what you can to give your mind a bit of peace from the mouse-wheel that it's on. I can only guess at how scary this must be but I do know there are many on this site who are living with a similar diagnosis to what you may be facing and will no doubt come in to this conversation. Once you have a treatment plan you will have a better idea of what to do.