Hi Amanda
I can only begin to understand the incredibly tough weekend you must have had and yet you have the strength to continue let us know how you are doing. That just adds to the inspirational effect you have and continue to have - your wise comments, advice and thoughts.
I am so pleased that you have a plan as I sense that for you that starts the feeling of working with a purpose and the steps towards the next goal. I do hope that this plan does allow you and your family to live with and manage this disease in a way that you can enjoy a wonderfully long life with those special children.
You exemplify a very special quotation " Courage doesn't always roar. Sometimes courage is the little voice at the end of the day saying, 'I will try again tomorrow'".
Thank you for all you have done for me and I believe many other women on this bcna site and we in turn are now here to support you in whatever way possible.
Amanda I will hold you in my thoughts and prayers constantly, Dette xxx