The new normal

Hi Heli,

if you request to be come a member of the depression and anxiety group and once accepted if you choose "post" then choose the group and it will only be able to be seen inside that group.. Nowhere else

I Am living with Liver and bone mets and chemo and oestrogen murders are indeed a challenge to this little turtle and fatigue has been a huge issue with me at various times.  Some times due to the liver squatters playing up and sometimes purely due to the treatments.. I also suffer from serious joint pain and stiffness during oestrogen murdering such as letrozole and currently exemestane. (not everyone thankfully gets this stuff).

It is indeed awesome that you have been able to stay active but this 'set back' would be very difficult to accept as it such a 180 degree change from before.  When my fatigue is at its peak, my "new normal" can bring thoughts of failure, hopelessness, why bother and the list goes on. I find I am always on the lookout for something I can change so I can get or stay mobile and active but have altered how I do things and turtling has become a way of life (so far from an operations manager for a 24hr security firm with monitoring center).

Please excuse my waffling on but I really wanted you to know that you are not alone in what you are going through, this disease can seem to be like the quiet companion and then bam....  it is trying to be the boss and rule your every thought..  It is a crazy, annoying and exhausting roller coaster ride. Then without warning, it can just quieten down again and it seems ok.. 

I have found success with my Naturopath (she has a special interest and also trains in 'cancer'). We regularly check my oncology medication (to ensure we are not doing anything to harm its effectiveness) and try to keep my body functioning as well as possible so treatment is not so draining. When I first arrived on the door not long after Abraxane my inflammation levels were ordinary to say the least and now we seem to have them sorted with a combination of 'tasty' herbs and supplements and diet.    I did my first chemo and rads in 2004 without her and the after effects lasted for near 2 years..  With her, it was on my feet within a few months of finishing the Abraxane..  This latest lot has taken a little longer (damn annoying really) but it really hit me very hard by the 6th dose (Taxotare/cyclophosphomide).  If you are interested, perhaps I could ask her if she knows someone with the same interests as her in your area?

I am hoping you are able to gain energy from your resting and very soon find what it causing such severe fatigue.

sending huge turtle hugs, Sharon x0x0x0x0x