Forum Discussion
Secondary breast cancer
Hi this is my first blog,
I have been living with mestatic breast cancer for 4 months now, well that is when I found out that the cancer had spread to my skull, spine, pelvis, ribs, throat, chest wall and 2 weeks ago I was told that it is now in both my lungs.
I am still working full time, now that the pain has been managed, it's amazing the treatments they have out now, I thought I was going to be bed ridden with the pain.
Though I think the best medicine is having a positive mind, faith and HOPE. I know there is no cure for my cancer now, but there is always HOPE as new treatments are coming out that will prolong my life. I could still be around for many more years to come, well I am going to be around for many more years to come, that's better thinking.
I praise the Lord for helping me with his courage, spirit and wisdom.
64 Replies
- You are doing so well for just 4 months in. After 4 months I started to have a breakdown about the enormity of it all and being single with a 13yo. Well done you. What treatment have u received to stop your mets? It is amazing all the treatments we have. Also what sort have you? Oestrogen positive /negative? HER-2 pos/ neg? I am triple positive. I have bone mets in most places u mentioned in bones and in liver. I have bone scan and CT tomorrow so will be interesting to see how I am going after 18 months of ABC. I had early BC in 2003. Keeping smiling Christine
I am glad to hear that the mets have not become active, I hope that you have healed properly. I am thinking, well my body is telling me to go part time which I will be doing very soon. Thanks for your reply, I have been getting alot of messages, this is a very supportive group, it will take my days to reply to everyone, wow
xoxoxox
I am so glad, you have made my day if I can give hope to someone then that is great. I believe everyone needs to hold onto hope, thats the way I look at it, there are always new things coming out, my oncolgist stated to me if my next scan shows any increase of nodes in my lungs then he might treat me with a new treatment, dont know what it is yet, but Ill be in that
Wow you sound amazing, I know what you mean about others living with life threatening diseases, that how I have been thinking. I know have a chronic condition that needs to be monitored and managed is what I say to myself. I am so sorry to hear that you have brain mets, this must be hard to digest, thinking of you.
It must be so hard for you having young children, I have a 20 year old daughter who is finding it hard to deal with, let alone younger children who really might not have learnt coping skills or can fully comprehend what is really going on, except for your 14 year old. I am thinking of you
- Catcrazy I'm 35. I've only recently joined this group. I really liked what you had to say too. It is the best thing to hear of people with hope. We too are still trying to come to terms with the idea of it being incurable but swing between putting it "aside" and ignoring it and then floundering. Hearing peoples positive stories is so strengthening and whilst I know we can't compare and know everyone is in a different position fit doesn't hurt to hope xxxx
Totally loving your outlook especially when you are only 4 months in. I too am sorry to have to meet here in this group. Pain free is a very good way to be whilst living with this disease. I had EBC in 2004 (38) and now ABC since 2012 (46 and I work on minimising it every single day. I am so very glad that your onc has a good outlook and it is a way better and yes, there are many things they can try to stabilize us.. and I wish you the best outcome xxx. It is certainly a new kind of normal..
SharonTotally loving your outlook especially when you are only 4 months in. I too am sorry to have to meet here in this group. Pain free is a very good way to be whilst living with this disease. I had EBC in 2004 (38) and now ABC since 2012 (46 and I work on minimising it every single day. I am so very glad that your onc has a good outlook and it is a way better and yes, there are many things they can try to stabilize us.. and I wish you the best outcome xxx. It is certainly a new kind of normal..
Sharon- I think I echo Gaylene's thoughts in welcoming you to this group while acknowledging that it is one to which we all wish we didn't belong. Nevertheless welcome and I hope that the group helps with support, information and a place to chat with others with similar experiences. I was diagnosed 5 years and don't often talk about it. I had been working part time up until July when I fell and broke the neck of femur. Fortunately this was not the mets deciding to become active again, just clumsiness combined with a slate floor and a bit of bad luck. Well done on being at work full time and I am pleased to hear the pain is under control. Be kind to yourself and maintain your hope.
- You give me hope that I can actually do this, thank you. Xxoo
