Forum Discussion
Recurrence in lymph nodes
Hi everyone,
I was diagnosed with TN Inflammatory BC in late Oct 2017. Treatment was 5 mths of Chemo ( 8wks fortnightly A/C, followed by 12 weeks weekly Taxol) then modified radical mastectomy (rt breast and 3 lymph nodes) which showed only a tiny amount (1.3mm) of residual disease with excellent margins. There had been evidence of activity in the lymphnodes. Surgery was followed by 5 weeks radiation and then I had what I refer to as my bonus chemo - 4 months of Capecitabine (Xeloda). That all took me to Christmas 2018.
Since then I have been feeling better each day and looking fabulous (according to my dear friends and family!). On an o/s trip in early June I noticed the onset of lymphoedema in the right arm - sad but not completely unexpected after the radiation. As soon as I got home I booked in to see my surgeon, who is wonderful and always says to see him asap if anything changes. He sent me for an ultrasound, having said he didn't expect anything sinister. Unfortunately the ultrasound shows at least three lymphnodes appear enlarged and diseased - I go back on Wednesday for a Fine Needle Biopsy, but the radiologist made it pretty clear she thinks it's not going to be good news. I have to wait until next Monday 22nd for the results and to know what I'm looking at in the way of further diagnostics/prognosis/a treatment plan etc. I know there's not much advice anyone can give at this stage, but am just having a little freak out and trying very hard to stay calm for my darling husband, so I thought you would all understand if I had a little figurative scream in this forum!!
I am searching my self for the inner strength to do this all again - in some ways easier when you know what it entails, and in some ways so much harder for the same reason.
Worried and sad, but trying to be strong.
Sally
I was diagnosed with TN Inflammatory BC in late Oct 2017. Treatment was 5 mths of Chemo ( 8wks fortnightly A/C, followed by 12 weeks weekly Taxol) then modified radical mastectomy (rt breast and 3 lymph nodes) which showed only a tiny amount (1.3mm) of residual disease with excellent margins. There had been evidence of activity in the lymphnodes. Surgery was followed by 5 weeks radiation and then I had what I refer to as my bonus chemo - 4 months of Capecitabine (Xeloda). That all took me to Christmas 2018.
Since then I have been feeling better each day and looking fabulous (according to my dear friends and family!). On an o/s trip in early June I noticed the onset of lymphoedema in the right arm - sad but not completely unexpected after the radiation. As soon as I got home I booked in to see my surgeon, who is wonderful and always says to see him asap if anything changes. He sent me for an ultrasound, having said he didn't expect anything sinister. Unfortunately the ultrasound shows at least three lymphnodes appear enlarged and diseased - I go back on Wednesday for a Fine Needle Biopsy, but the radiologist made it pretty clear she thinks it's not going to be good news. I have to wait until next Monday 22nd for the results and to know what I'm looking at in the way of further diagnostics/prognosis/a treatment plan etc. I know there's not much advice anyone can give at this stage, but am just having a little freak out and trying very hard to stay calm for my darling husband, so I thought you would all understand if I had a little figurative scream in this forum!!
I am searching my self for the inner strength to do this all again - in some ways easier when you know what it entails, and in some ways so much harder for the same reason.
Worried and sad, but trying to be strong.
Sally
68 Replies
- I was hoping your news would be good, so sorry it wasn’t xx
- @sallylovestosing Sending prayers and huge hugs your way.
- Not what you want at all. But as everyone says, one step at a time. You can cover a lot of ground one step at a time. Best wishes for your appointment.
- Shit! Not what you wanted to hear. Thinking of you.
- Dear oh dear! Willing you along for a positive appointment with the Oncologist .
Deep breaths, baby steps
Take care - @sallylovestosing
My thoughts and prayers go to you.
Just know that someone far from you is thinking of you.
Warm Kimberley wishes to you
Annie - Oh Sally, such horrible news. I feel so sorry for you and your family. Do you have a plan yet for what happens next?
Many hugs and best wishes. - @sallylovestosing Grrrrr!!!! totally understandable, you have every right to be sad, frightened and even angry! When do you see your Oncologist? just remember as you have already done, deep breath and only 1 step at a time, I know its hard, but hang in there. Hugs M x
- Oh dear - feeling pretty sad and frightened. Just got the results of my PET scan - the bloody little infitrator has gone beyond the lymph nodes in the armpit to nodes in the chest and possibly adrenal glands - no point in surgery - do not pass GO, go directly to oncologist. Bloody hell.
- @sallylovestosing <3
