Thanks very much Kathy and sorry for my long delay in responding.
My oncologists think Perjeta would likely be the most effective next treatment, as I've been an "exceptional responder" on Herceptin, but also have a lesser detrimental impact to quality of life over Kadcyla. I have gone back to uni and this will be my last year of my Masters, so I really just want to get that finished so I can get back to work!
I understand there are no clinical trials of Perjeta as a second line of treatment in the pipeline at the moment, so we've decided to pay for Perjeta for 3 months and see if it works, then go from there. Roche have agreed to pay every 3rd treatment, which means we pay $3200 every three weeks, twice, then just a compounding fee for the third cycle treatment. I've had the loading dose three weeks ago (taxol + herceptin + perjeta), and will have my second cycle tomorrow. As my new growth is in my supraclavicular lymph nodes, we can actually feel that it's having an effect already!
I will keep updating here and would appreciate if anyone hears of any trials for Perjeta as a second/subsequent line of treatment, please let me know! :>
Thanks and best regards,
Keely
