Forum Discussion
KeelyB
8 years agoMember
Perjeta access as second line treatment for HER2+ MBC - suggestions please
I was diagnosed with MBC in Nov 2011 (first diagnosis: mets to liver, bones, lung & brain), and have been feeling very well for years on Herceptin. However, this month, there has been new growth in t...
primek
8 years agoMember
Hi @KeelyB Whilst I'm not in your position I cannot believe the idiocracy of this.
Perhaps your oncologist can contact the drug company directly and request they consider you a special circumstance. I know they have done this for others requiring treatment for Estrogen cancers. It's worth asking if they could consider this since perjeta wasn't available when you first started treatment .
I guess they may offer to test and see if improvement is noticed with the addition. The cost is out of most people's reach otherwise. Hope they will try for you. Your bc nurse might be able to help push this for you.
Also..will they re-biopsy these areas to ensure no pathology change? ..I believe sometimes cancers can do this and therefore require a new plan of attack.
Kath x
Perhaps your oncologist can contact the drug company directly and request they consider you a special circumstance. I know they have done this for others requiring treatment for Estrogen cancers. It's worth asking if they could consider this since perjeta wasn't available when you first started treatment .
I guess they may offer to test and see if improvement is noticed with the addition. The cost is out of most people's reach otherwise. Hope they will try for you. Your bc nurse might be able to help push this for you.
Also..will they re-biopsy these areas to ensure no pathology change? ..I believe sometimes cancers can do this and therefore require a new plan of attack.
Kath x