Forum Discussion
roby24
8 years agoMember
New to the group
i live in a country town where they have no groups for Metastatic breast cancer it is more first women that have been early diagnosed. So when i was told that group was on line i was really pleased reading so many out there are the same and your not alone. Was diagnosed in 2009 with stage 3 and 19 lymph nodes taken out that were cancerous . Went on Tamxophine got blood clots so then went on Admara and Femara for a short while after . Then on May the 1st 2017 went for blood clots new they were there to find out have bone mets and liver mets.The bloods clots were telling me it was back as in August the 2016 i had ct scans done mri and whole bone scan and everything was clear.So i am happy the blood clots yelled out would of not known.I did 8 months of chemo and now on femera and Kisqali . Have a few scan done in the last 12 weeks as ca counts went up but scans show lung mets and bone mets stable and blood test good.Mri good. Get anxious when time to go and find out blood test restults as i am going next Tuesday.Does any one feel the same dont understand ca counts would rather do scans as they tell the picture.
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15 Replies
- Giovanna_BCNAMemberHello @PatsyN and @Romla
Thank you! Im one of the moderators on the weekends and like to check in a couple of times during the day!Sign in to react to this post - RomlaMemberI’ll second that @PatsyN !Sign in to react to this post
- PatsyNMember@Giovanna_BCNA - you girls work all hours. I have so much admiration for this site and the moderators. xoSign in to react to this post
- Giovanna_BCNAMemberHello @roby24
Thank you for your post, I have just responded to your request so you will be able to access the living with metastatic breast cancer group.Sign in to react to this post - roby24MemberThankyou to everyone for their help will wait until tom.Sign in to react to this post
- SoldierCrabMemberRoby24 it possibly means no facilitator for the group is online right now .... We suggest waiting 24hrs to get a reply ....Sign in to react to this post
- wendy55MemberHi @roby24, sorry should have explained myself better, yes. a good idea ring bcna tomorrow,and they can do it for you, Im not very computer savvy myself, but there is always someone on line to answer any questions,
wendy55Sign in to react to this post - lrb_03MemberI think one of the admin for the group have to accept you, and then you will be notified. That's generally the process with closed groups.
Take care @roby24Sign in to react to this post - roby24MemberThankyou iserbrown or your help did that before it asked me a question why i wanted to join i said why but not reply will ring bcna on Monday and see what they saySign in to react to this post
- iserbrownMemberhttp://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer
Try this link on my phone to the join button is on the right hand sideSign in to react to this post