Hi kim
Thank you for posting this wow you have helped me enormously!! I was diagnosed in April last year and again in Dec with liver mets 12 inoperable shock horror..... I am currently on herceptin and perjeta indefinately.... I just have to ask is that your hair as since having taxol only one infusion and then being on herceptin and perjeta my thick glossy hair is super thin and fuzzy and horrible. My onc refuses to believe it is the drugs but it certainly is......... I had a thick mane of hair.
But its so wonderful that time is on your side and this encourages me. I have bad days and good. I feel well and energetic mostly and so happy and try to forget about it but then sometimes when I for some reason do not feel well then I have a dark low day and so on..... Do you have any side effects at all? I have a horrible burning itch constantly and at night it wakes me all the time it is depressing. Nothing alleviates it at all... I spend most of my time in baths and applying creams that don't work. Please tell me how your tumor markers have been all along?? up and down or just down... I also got told yesterday I am quite yellow. I havent really noticed it because I have very olive skin however when I looked down at her arm next to mine taking blood I most certainly did look quite yellow . Another worry....
But thanks for posting it has made me for one feel a whole lot better about this horrible disease......and the future.
Hi @Sam09 yes this is my hair now 5yrs since diagnosed with liver mets. I did 2yrs chemo Abraxane / Herceptin and for the past 3yrs Herceptin / Aromasin which I will continue indefinitely.
I have bad days just this weekend I spent in bed with a massive migraine and vomiting not pleasant at all. I mostly have mood fluctuations as in coping and doing really well then I fall in a ditch somehow and are quite flat, but I always know I will dig myself out and get back to feeling better. My tumour markers were high 700's now sit around 25, it was a rapid decline in tumour markers over the first year and by year two it was down to 25 where it sits today, so they have stayed down.
All the very best xx
