My story

Hi Lala

Receiving the news that the cancer has spread is devastating. I was diagnosed with mets in bones right from the start.  Here you will find great support - it was a lifesaver for me when I was first diagnosed.

Know that you are not alone.  Take care.

Amy

Hi Lala, I am currently attending The Launceston General each day for Radiation, mon to fri, as part of my treatment as a Triple Negative Breast Cancer person.  I just turned 47, so similar age.  I have had great support here via BCNA, and through the Launceston Cancer Council.  Wishing you all the best of luck with your health, sounds like its a lot for you to have to cope with.  I hope you find some relief via the great people on here, and there is plenty of support for people out there.  Good luck, Bel

Hi Lala, Further to Leonie's comment. You can connect in with others who have also been diagnosed with bone mets through the 'Women living with advance breast cancer' group her in the online network - Follow this link and request to join. -- http://www.bcna.org.au/group/4218

Please let me know if I can help you find your way around.

~Daina

What alot to get your head around in such a short period of time.Most of us just have to cope with the breast cancer shock.It seems they moved the goal posts on you after you got through surgery.So sorry to hear you've got bone mets as well but it's good your oncology team are fast tracking your chemo. This is a terrific network to join - we all support each other and share information. I've had early breast cancer twice(in the same breast)-first time in 2003 and then again in 2010.As a result,I've had all the treatments and am now on Tamoxifen.I can only imagine how scary it is at the moment for you but they have so many more drugs now to treat bc  metastises and women are surviving longer and living well,I have one such friend who was diagnosed 4 years ago with bone mets.  So blog back here any time for info and support or just to vent.You are not alone-sending hugs

                                   Tonya xx

XLeonie

You definately are in a nice place.  Support whilst going through the bc journey sure is a must.  I have a young friend who is going through similar to yourself.  She has secondaries in the sternum and mets in her lung.  She is extremely proactive with her treatment and has done a lot of research to find the best oncologist.  I will message you her name.  She is on this site but not too often as is mostly on facebook (advanced breast cancer support group).  You might like to message her. XLeonie

Hey Laree

Just up above the box on right that has your profile there is a Q & A tab and there is also a Help tab.  Perhaps give them a go.

Your Messages - if you click on Inbox below where it says your messages in your Profile Box all your messages should come up.

I have messaged Daina who is our online Network Guru who should be in contact with you soon and she is able to help you find your way around the site I am sure.  Hope that helps.

Tassie is an amazing spot.  My beautiful daughter booked a trip of flights and amazing accomodation for hubby and me for Mothers Day when i was going through my treatment.  The only problem was that it had to be used by a certain date.  We decided to go between my chemo and radiotherapy but unfortunately I was still very unwell and my lymphodema decided to pop its ugly head while over there so I didn't get to enjoy it anywhere near as much as I could have.  We did do some touring around in the week we were there but my favourite thing was the Salamanca Markets which blew me away.

I can't wait until we can afford to return for longer than a week and also when I am fighting fit so as to enjoy every minute of it.

Lots of love, Michxo xoxo

Thanks for replying Mich.

I am in Hobart, Tasmania. I was actually here on extended holiday when diagnosed and live in Qld, but decided to stay here where I have more support throughout my treatment.  I am generally a tough cookie and find I can tackle most tthings with a positive spirit. I certainly intend to do that with this rotten cancer, once i get over the shock!!

I am finding this site very difficult to navigate. Any tips?? I'm an experienced user of forums and support groups and all forms of social media, but trying to find the actually messages my "inbox" is telling me I have is rather challenging!!  Help - floundering here!

Laree ;)

Thanks for replying Mich.

I am in Hobart, Tasmania. I was actually here on extended holiday when diagnosed and live in Qld, but decided to stay here where I have more support throughout my treatment.  I am generally a tough cookie and find I can tackle most tthings with a positive spirit. I certainly intend to do that with this rotten cancer, once i get over the shock!!

I am finding this site very difficult to navigate. Any tips?? I'm an experienced user of forums and support groups and all forms of social media, but trying to find the actually messages my "inbox" is telling me I have is rather challenging!!  Help - floundering here!

Laree ;)

Hello Lala

Lovely to meet you but I am truly sorry you have to be here.  You have come to the best place for some love and support and advice when needed.

Have you been in contact with BCNA to receive your Hopes and Hurdles pack.  You can order it online thru resources at the bottom of the page or phone BCNA direct.  I know I harp on these resources but I think everyone who has used them have found them invaluable.  Plus there is so much information in them.

It does sound like you are pretty much on your own.  Which state do you live in?  I am in Perth.  There are so many supportive groups out there in all different areas that will assist you or support you if you need.  I am so glad you do have very supportive friends and some family near by.  We are here to chat with you whenever you need.  You can use the Search mode at the top of the page and type in what you are looking for and posts from other girls relating to that will come up.  There is a great post called what has helped you through your journey.  I do know there are different groups on the network of BCNA which relate to different forms of cancer.  You can always contact BCNA by phone and the girls there will be more than willing to point you in the right direction.  They are not there for medical advice but will definitely be able to assist you with any support you need.

Sounds like you have been doing it tough already with your other illness but I am sure it has made you stronger and hopefully that will help you fight this latest setback for you.  It is good that it has all happened so quickly so you didn't have the time to worry over it all but I am sure it was a huge shock for you to get the latest diagnosis.  

I am unable to say the words to show you that you are not alone and that we will support you in any way we can.  We are here for you.  You have touched my heart.

I am thinking of you, lots of love always, Mich xoxoxo