My first post, diagnosed with MBC in January 2020

Question

Posted on behalf of @Sonya9 in main discussion forum

ddon · Answer

I was reading recently of a lady who had undergone ‘whole brain radiation’ with metastatic bc and was back jogging 6 months later. It sounds terrifying but your medical team know what they are doing and have your best interests at heart.&nbsp;I am finding that the way I deal with my fear is trying not to think past what is directly in front of me because anymore than that can be overwhelming. Sending a big hug xx

tinks · Answer

I’m sorry to hear of your diagnosis.&nbsp;It’s great that you have reached out to the forum. Here everyone gets it as we are all at various stages of our cancer treatments. Feel free to express your fears, ask questions and get support. Here you are among friends.I &nbsp;had radiotherapy to the chest wall and nodes around the collarbone so I haven’t got direct experience of brain irradiation, but a work colleague had it and I do know that the radiation itself is painless and they have modern technology to help you to stay very still and comfortable as required.&nbsp;Try deep breathing gently, close your eyes if you like and ask if you can have your favourite music on. I found that helped me.&nbsp;The nurses were amazing and the tech staff who set me up for each dose were just lovely too. They actually spent more time getting me set up each time in the right position than the actual therapy!They will take you through exactly what is going to happen when you go for your set up appointment. So then you know what it’s all going to be about what the machines look like, what you need to do and ask as many questions as you need to for you. You can always call the nurses if you need advice in between times. They will also take you through any side effects of your particular treatment and how to manage them.Hope this helps. Hang in there and stay online about how you are going.&nbsp;Big hugsTinks xx

pv123 · Answer

Hi @Sonya9 You have had a really rough ride so far, what is the pathology of the cancer, I know of a couple of ladies at the cancer centre who have been talking about having radiation to the brain. &nbsp;While I haven’t spoken to them personally, I must say they both look well to me. &nbsp;Fear is a constant feeling for me as well, please speak to a counsellor. I know the cancer council offer counselling services as well. &nbsp;Wishing you the best with your treatment.

sister · Answer

@Sonya9 Welcome to the forum.&nbsp; Have you joined the private group "living with metastatic cancer"?&nbsp; You may find more information there.

gumnut · Answer

Dear @Sonya9 I'm a member of the Living with Metastatic Cancer group - this group has lots of lovely ladies with really valuable well informed knowledge to pass on and also with lived experience - you might find it helpful as well? It's also a private group. You can just click on the group and ask to join .....I hope that this helps you a little? All the very best for tomorrow &lt;3

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My first post, diagnosed with MBC in January 2020

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