Maxine

Hi Beery, I was on Aromison and Afinitor for seven months. The Afinitor has now stopped working resulting in a new met in my arm, which I started radiation on today and I will be having 5 rounds. I'm getting the results of a chest/abdo CT tomorrow so hoping things haven't become any worse. I started on Afinitor 10mg and it did knock me around terribly. I felt dreadful and my mouth was full of ulcers. I had to stop taking it for two weeks while the ulcers healed. I then went onto it at 5mg which was much better. I read somewhere, I think it was in the info I printed off from the computer describing Afinitor that it will work somewhere between 4-11& half months. Seven months is average. I feel that you just have to give everything a go and just hope for the best. Cancer is very sneaky and finds its way around these medicines so it's a case of giving it a run for the money. I'm probably going to start on Xeldo as soon as the radiation has finished, I will find out tomorrow. I hope this info helps a little. Wishing you all the best. Cheers from Annette