Forum Discussion
long term herceptin for bc mets....
Found an old discussion from Kari_2015. Just wanted to let ladies know that I have been on Herceptin for 13yrs. Managing to keep lesions only in bone so pretty happy with that... Only know one other lady that is on herceptin still...been 11-12yrs for her too. My understanding is that if you are going to have problems cardiac wise it is more likely to happen in the early stages. I have reg echo's done. Get pissed off with having treatment at times but very thankful for this drug... would love to hear from others that are on herceptin long term.. cheers :)
39 Replies
- I've been having Herceptin infusions every three weeks since Aug. 2011. Yesterday was no. 116. I'm able to go on Saturday mornings which suits my schedule. I'm now retired but for the first six years I was working hence the Sat. choice, since retired but on Sat. the hospital is much quieter and there's no need to wait in the sterile and uncomfortable waiting area. I also have no weekend commitments.
- Hi @Mazzi, well done for 13 years that’s amazing! How do you cope with the 3 weekly infusions for that amount of time? I’ve been doing the 3 weekly Herceptin and Perjeta combo for 4 1/2 years and I am SO over it!!!!
- yep well I am still here, still having treatment and still swearing...lol
hope you are all doing ok - Big hugs and best wishes to you @Mazzi
- This is what I love to hear - someone on medication for thirteen years ..... 💜💜💜
- Bugger bugger bum! Yep, you can drop the F bomb .... Hope all goes well with the colonoscopy @Mazzi . they are never fun. Xxx
- thanks. go in to do paperwork Monday so hopefully it won't take too long :)
- oh Mazzi
Sorry you have to go through this Roller Coaster ride :neutral: - thanks everyone. went to oncologist yesterday to get results of CT scan and they are now sending me for a colonoscopy..not sure when that is going to happen...fuck (can I say that?) the waiting game continues. trying not to worry too much as have no symptoms so onc is pretty sure it will come back ok.the roller coaster of 'our normal'. it just continues LMAO!!
- Hang in there Mazzi. Big hug, K xox
