Kisquali
FYI - I did post in private group last night but no response so thought I'd try here as well. :-) Hi there all, Strange question for you all for a Sunday night - I'm on my 13th round of Ki...
Forum Discussion
Hello! I was diagnosed with de novo stage 4 with spine mets in December 2018. I started ribococlib/letrozole/denosumab in January 2019. I had the spinal tumor removed and radiation in Dec/Jan 18. I was having a monthly Zolodex injection to suppress my ovaries but had them taken out in May 19.
Thank you all for sharing your side effects - as well, I just thought my feet had gone horrible and peely dry but now I know that is a side effect - thank you! My hair fell out quite a lot early on but I had thick hair so it just went kind of thin. Now I have, as my hairdresser calls it, baby hair growing out all over. I have crazy weird side burns that I can twist so they are standing out horizontally which is a good look!
I also had amazing results from my last PET scan earlier this year. The breast tumor has shrunken considerably and the spots in my lungs have gone down and my spine is stable. There are a few spots left there which they could mop up with more radiation but I am managing the pain so we are leaving that be for now.
The tiredness/fatigue is the main problem, and the pain from sitting or standing too long.
The tiredness/fatigue is the main problem, and the pain from sitting or standing too long.
It’s just good to hear from other people in the same position and realize all the lumps, bumps and dry feet are ‘normal’.
@joinmelb I also have a very wicked sense of humor - it has got me through 48 years and hopefully a few more!!