Kisquali
FYI - I did post in private group last night but no response so thought I'd try here as well. :-) Hi there all, Strange question for you all for a Sunday night - I'm on my 13th round of Ki...
Forum Discussion
Hi there @Ellamary98.
Wow, you've been on this drug combo for a bit longer than me! What a wonderful learning experience this cancer crap is for everyone!! (Yes, apologies I have a very wicked sense of humour!!)
Drug reps have no idea, earlier this week it was just too upsetting looking in the mirror without my wig as I looked like crusty the clown crossed with a mad scientist and I just wanted to bawl my eyes out! So off to the hairdresser I went and I've had it all shaved off, it feels so much better and I'm not sure why I didn't do it sooner. I saw my normal hairdresser and she thought there was some new growth happening too, so I'll keep an eye on that. I have made sure I've taken photos all along and they have been forwarded to the drug reps by the breast care nurse. I'm wearing the wig out all the time and just go hairless at home, kids think it looks way better too so that is a big positive. It's an "all over" hair issue now though, eyebrows, leg hair, underarms, you get the drift ;-)
Oncologist has swapped my letrozole out and swapped me over to anastrozole in the hope that may make a difference to my hair.
I'm seeing her at the end of this month so will see what she says about the lower kisqali dose, interestingly my joint pain in my feet is probably worse at the moment so I'm wondering if this is a different side effect that the anastrozole causes. Off to buy some comfy sneakers that will hopefully help me as walking around at work some days is excruciating. Another expense I certainly don't need!!!
Wow, you've been on this drug combo for a bit longer than me! What a wonderful learning experience this cancer crap is for everyone!! (Yes, apologies I have a very wicked sense of humour!!)
Drug reps have no idea, earlier this week it was just too upsetting looking in the mirror without my wig as I looked like crusty the clown crossed with a mad scientist and I just wanted to bawl my eyes out! So off to the hairdresser I went and I've had it all shaved off, it feels so much better and I'm not sure why I didn't do it sooner. I saw my normal hairdresser and she thought there was some new growth happening too, so I'll keep an eye on that. I have made sure I've taken photos all along and they have been forwarded to the drug reps by the breast care nurse. I'm wearing the wig out all the time and just go hairless at home, kids think it looks way better too so that is a big positive. It's an "all over" hair issue now though, eyebrows, leg hair, underarms, you get the drift ;-)
Oncologist has swapped my letrozole out and swapped me over to anastrozole in the hope that may make a difference to my hair.
I'm seeing her at the end of this month so will see what she says about the lower kisqali dose, interestingly my joint pain in my feet is probably worse at the moment so I'm wondering if this is a different side effect that the anastrozole causes. Off to buy some comfy sneakers that will hopefully help me as walking around at work some days is excruciating. Another expense I certainly don't need!!!