Just thought I’d update you all. My hair started falling out in massive clumps last week. I have bits of bald patches everywhere. Had a few major tantys and meltdowns as no one appeared to be listening to how bad it actually was and kept saying thinning hair was normal. I kept saying not to this extent!!!!!
I’ve ended up getting a wig this week so I can continue to “fly under the radar” as they say. I’m a teacher and I’d prefer parents and kids not to know as well as wider community. I’d prefer to keep it to myself and close friends and work colleagues for as long as possible. Like I have explained to others, yes I quite proudly shaved my head last time when I had chemo but there was an end point at that time. This time there is no end point and I can’t see the hair getting better any time soon. Once people see thin hair and headscarves I’m going to have to tell people and I’m just not ready for that just yet!
Once I had my meltdown to all who would listen it appears that they’ve never seen it happen so rapidly or so extensively, so drug company rep is looking into it, breast care nurse is on the case as is my amazing naturopath. Wig is very hard to get used to but I’m trying. Have had full bloods done but have only heard back that my iron and vitamin d levels appear fine. Nothing else was mentioned so assuming it’s all fine. Fingers crossed. Pulled on my big girl
panties and ready to fight!