Kisqali

@Glynnis Good news.  You can do without the unnecessary stress of having to chase your meds around!   My first month on kisqali has been okay, I hope it goes well for you too. :)

@Marieda I went back to the chemist and said I could get it at a chemist in the next suburb because he can order it in from a different supplier and low and behold he made some phone calls and he can get it in for me, so the hospital is doing this months then I’ll go to him from there on, we think he put it in the too hard basket cause he moved pretty quick when I said they could get it and I didn’t want to take my business there when i had been here for years. Win win for me 😃😃

@Glynnis I am sorry you have had such difficulty ordering your kisqali.  I am lucky in that my pharmacy seems able to get it in the next day.  I am in the Southern Highlands of NSW so maybe it does not have so far to be delivered.    It is a large cost to the pharmacy, over $5000 to lay out until the prescription is made up, then they get their refund.   Could be why some are reluctant to order it in, and being so new on the pbs they may just not be familiar with it.   

Just an update the hospital is ordering it for me so at least I can get started then next time order it from the chemist 😃

Thankyou everyone, I’m off this morning to chat to my local chemist about it again to see if they willing to help and order from a different supplier if not I’m going else where, it should be easy you would think to get your meds I understand it has to be ordered which is fine but why is it so hard to just get your meds. Very frustrating just something none of us need.

Did you all hear that palbociclib is finally going to be on the PBS starting in May. It's great news finally for all the people paying thousands a month for it.

@Glynnis, I'm in Perth, I think it comes from Canberra, I can just go to the chemist, I use terrywhite chemmart, but they still have to order it in, they don't keep it in stock as it's not something that everyone needs like high blood pressure meds. I'm just lazy, I do everything online, saves me a trip to the chemist just to order it, you will need to give your script to your local pharmacist first up, I really didn't explain it very well did I? They will order it in, then you can leave the script with them and when it's due use the app or call them at least 5 days before the next cycle so they have time to order it in. I'm sorry not to be clearer first up, I blame it on the drugs. :|

It's absurd that it's so hard. Utterly ridiculous. This is the most common cancer in Australia. I hope you can get it all happening smoothly @Glynnis. K xox

Hahaha now the app won’t load properly hahaha

@Kattykit Thankyou have just downloaded the app will have a look at it, can I ask where you are located? I’m in Melbourne. So doesn’t it just get sent to your local chemist is that how it works?