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Giovanna_BCNA's avatar
Giovanna_BCNA
Member
6 years ago

I am new to the network and have metastasis

Posted on behalf of JLea

Hello everyone,

I am new to the network. I was diagnosed with metastatic breast cancer in 2016. I had a double mastectomy and axillary clearance and chemo. Six months ago I was found to have mets in my bones. Including skull, spine down to T10, scapulae, ribs, sternum, pelvis and femoral head. So quite extensive. I’m on Palbociclib and Letrozole. As Palbociclib is a 3 week cycle with one week off. The bone pain builds up over the 3 weeks, particularly in skull and spine, as my entire skull is riddled with mets.

Has anyone got a similar diagnosis? I have major depression and feel very bleak about my prognosis.

Regards


bone-pain
coping
double-mastectomy
metastases
  • Hankster's avatar
    Hankster
    Member
    6 years ago
    Hi can I suggest you join the private group for Mets.  I had a similar diagnosis after 20 years cancer free.  In my neck, back, rib, pelvis.  It has been six years since my Mets diagnosis and I’m still going strong.  I had major depression and panic attacks for the first 12months.  Now I am living my best life.  Take care xxoo
  • primek's avatar
    primek
    Member
    6 years ago
    @JLea
     I haven't but just wanted to say hello and hope the pablociclib slows it down for you but if doesn't I expect radiotherapy will be considered. 
    There is also a private metastatic group you may wish to join. You may find similar posts and discussions. The link is below. 

    https://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer

    Also I am wondering if you have the hopes and hurdles resources. You may have got these already from your breast care nurse at the beginning when diagnosed. I've added the link below.

    https://www.bcna.org.au/resource/kits/hope-hurdles/

    We are thinking of you and hope you can connect with other members soon. X