Forum Discussion
De Novo Metastatic with new progression - first post
Hi there, I am completely new to the discussion boards (first post) and trying to stay positive. I was wanting to reach out to others who might understand what I am going through. I was diagnosed de...
@Jackie50, thanks for your positive thoughts and encouraging words. I had to go back over my notes to find the date but I started the ribociclib/letrozole combination on 06/09/2018 and will finish my last course this week. I had a bit of nausea and fatigue the first month but nothing after that. My white blood cell counts have been a bit down and my hair is now very thin but that is a small price to pay. I'm not sure when they stopped working because the latest scans I've had are the only scans I've had since my initial diagnosis. Perhaps my situation could be much worse without the drugs? I do know how fortunate I have been to access these drugs as they only became available on the PBS on 01/07/2018 with certain eligibility requirements. I have read a lot of the research articles which indicate very encouraging results. As I keep hearing though, what works for one person may not work for another as everybody is different. Good luck and I hope you have good results from your treatment.