Forum Discussion
Marianne_BCNA
8 years agoMember
Continue the Plan C discussion in the metastatic group
Hi all, A big thank you to @MoiraC who ran the discussion session at the end of the Plan C. It was very well attended and started some importance conversations regarding access to treatment, talking ...
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jena
8 years agoMember
Thank you bcna team for organising such a worthwhile event. It was uplifting & inspiring to be in a room with so many other women and fellas, with metastatic disease. It was a pleasure to meet some of you. Iβm sorry there wasnβt more time to meet more of you & share stories and ideas. Maybe the next conference could be over 2 or 3 days with a dinner? (I appreciate this is a huge ask for bcna staff :# )
My favorite session was the one about exercise as medicine - Iβve always been a firm believer so it was very interesting learning about research that is taking place at Edith Cowan uni. I plan to contact the exercise medicine research institute to see if itβs possible to have an exercise program designed for me long distance. My bones a riddled with Mets and my left pelvis keeps breaking The exercises Iβve been given by my local exercise physiologist are too strong for my bones so it would be great to discuss my current exercise program & my desire to get fit again with someone who understands what cancer does to bones. I have been active all my life and it is driving me crazy being able to do so little. Iβm sure most of you feel the same.
I keep hoping someone will have a magic wand to wave over me and repair my sorry bones. Sadly .....
My favorite session was the one about exercise as medicine - Iβve always been a firm believer so it was very interesting learning about research that is taking place at Edith Cowan uni. I plan to contact the exercise medicine research institute to see if itβs possible to have an exercise program designed for me long distance. My bones a riddled with Mets and my left pelvis keeps breaking The exercises Iβve been given by my local exercise physiologist are too strong for my bones so it would be great to discuss my current exercise program & my desire to get fit again with someone who understands what cancer does to bones. I have been active all my life and it is driving me crazy being able to do so little. Iβm sure most of you feel the same.
I keep hoping someone will have a magic wand to wave over me and repair my sorry bones. Sadly .....
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