Forum Discussion
Pebbz1981
8 years agoMember
Bit down lately
Hello all,
I don't even know where to begin. I have been feeling a bit down lately. I have been sick with a throat and ear infection which is taking so so long to go away, also June 22 was 9 yrs since my first ever diagnosis ( metastatic is my 3rd ). so many thoughts are going through my mind. I know when i am sick i start feeling worse and all sorts of thoughts enter my head. 2018 Has not been a good year for me so far. I started the year off in hospital with an infection they could not find, i had to have platelet and blood transfusions ( first ever). since then i was released from hospital then went back in, have had another blood transfusion, have changed chemo, started Denusomab injection, stopped injection due to vitamin levels being so so low, have had such bad ulcers, have lost about 12 kgs this yr so far, Have had numerous bouts of Diarrhoea and also constipation from the chemo meds. I feel like my body is giving up, it is so so weak, i hardly have the strength to walk, i am out of breath so easily, i have trouble eating as my throat feels like it closes up each time i swallow and i actually have choked on food a few times. My last 2 weeks of chemo was cancelled to give my body a chance to get over the throat and ear infection, so i have 1 more week to try and get as better as I can and get back into a headspace to continue with treatment and to keep fighting. I dont know where to find the strength.....i know its in there somewhere as i have used it before multiple times.
I dont have many friends, I am unable to go out as the chemo makes me so sick and tired, the only chance i really get to go out is my off week which is every 3 weeks, my husband and I try and take advantage of that week. I am stuck between 4 walls everyday and spend most of my time in bed as the lounge is not comfortable. I seem to have lost enjoyment from alot of things lately.
I am not ready to leave this world and life as yet, there are so many things i would still love to do and see if my body permits it.
Has anyone ever felt like this? how do you keep going? This is the lowest i have felt in a very very long time. I have seen the counsellor in the past but i dont want to see her just yet.
I don't even know where to begin. I have been feeling a bit down lately. I have been sick with a throat and ear infection which is taking so so long to go away, also June 22 was 9 yrs since my first ever diagnosis ( metastatic is my 3rd ). so many thoughts are going through my mind. I know when i am sick i start feeling worse and all sorts of thoughts enter my head. 2018 Has not been a good year for me so far. I started the year off in hospital with an infection they could not find, i had to have platelet and blood transfusions ( first ever). since then i was released from hospital then went back in, have had another blood transfusion, have changed chemo, started Denusomab injection, stopped injection due to vitamin levels being so so low, have had such bad ulcers, have lost about 12 kgs this yr so far, Have had numerous bouts of Diarrhoea and also constipation from the chemo meds. I feel like my body is giving up, it is so so weak, i hardly have the strength to walk, i am out of breath so easily, i have trouble eating as my throat feels like it closes up each time i swallow and i actually have choked on food a few times. My last 2 weeks of chemo was cancelled to give my body a chance to get over the throat and ear infection, so i have 1 more week to try and get as better as I can and get back into a headspace to continue with treatment and to keep fighting. I dont know where to find the strength.....i know its in there somewhere as i have used it before multiple times.
I dont have many friends, I am unable to go out as the chemo makes me so sick and tired, the only chance i really get to go out is my off week which is every 3 weeks, my husband and I try and take advantage of that week. I am stuck between 4 walls everyday and spend most of my time in bed as the lounge is not comfortable. I seem to have lost enjoyment from alot of things lately.
I am not ready to leave this world and life as yet, there are so many things i would still love to do and see if my body permits it.
Has anyone ever felt like this? how do you keep going? This is the lowest i have felt in a very very long time. I have seen the counsellor in the past but i dont want to see her just yet.
19 Replies
- SisterMemberI am so glad that your headspace is turning to the more positive. It doesn't change what is, but does make it easier to deal with and it's good to be honest with those closest to you (although not always easy) about what you need. I hope things keep improving for you and stay in touch.
- kmakmMemberWhat a great post to read Pebbz! Happy to hear you're feeling a bit better.
I do gratitude every night with my niece. It's become one of my favourite parts of the day. I started it to help her get out of a negative mindset at bedtime but I think it helps me just as much.
Nothing like a wedding to look forward to! I know it helped @tigerbeth recently and we've had a couple of others here in the last few months. We've seen some lovely photos! Planning a gorgeous morning for your sister and finding the perfect gift sounds like an excellent distraction. Do let us know what you find!
All the very best and stay in touch. K xox - arpieMemberWell done, @Pebbz1981 - all the best on the road ahead - great progress! xxxx
- Pebbz1981MemberHello all.
I just want to start off by saying Thank you so so much for all the messages of support, I greatly appreciate it.
Since posting the message, I have started a gratitude journal and have been writing in that every night for the past week, i also went to my parents house for a visit ( they live next door) I have been trying to nibble on food a little bit more as i have lost my appetite with everything going on, I managed to have a long overdue discussion with my sister about what i need from her and how she can help and support me and in the mean time my parents also heard the struggles i have been going through, last night some family members came over for a visit which was nice. ( i find it awkward to talk to people now as i dont have anything to talk about). My sister is getting married in october and i honestly was not looking forward to attending the wedding but now i have been on google trying to find gifts and ideas to make the getting ready at home morning special for her. My throat and ear seems alot better, not completely gone but alot better. I have been speaking to a cousin of mine which has been a fantastic help and she actually mentioned the gratitude journal and next we are going to start meditation. I have tried it before and it did not work but i am willing to give it a go again.
I have read everyones messages and i really hope other people going through the same things as me were able to find some inspiration also in some of the very very kind words spoken. What we are all going through is not easy at all and 9 years on it is not any easier. We all have our good days and then we all have our bad days. I have not managed to get out into the sunshine as yet or really out of bed as i am just in a bit too much pain but i am hopeful maybe on the weekends i can sit outside for a little bit with my husband Jason.
I hope one day they find a cure for this wretched sickness and this will all be behind us but untill then we must find the strength to continue and move forward and live each day we have left however long that is trying to be happy and living somewhat of a "normal" life.
I wish everyone a great day and hope to talk to you all again soon, this time about something happy hopefully. - kmakmMemberHi Pebbz. How are you doing? It's been a week since you started this thread. I hope it was a better one for you. How are your ears and throat? Thinking of you and hoping that you're feeling a bit stronger. K xox
- primekMemberI don't have metstatic disease but certainly get the overwhelming exhaustion of chemo and the feeling of just "give up now" that goes with illness and depression. And yes lovely you really are experiencing depression.
Now "talk therapy" can help when your ready. But in reality maybe it's actually time to look at an antidepressant...or dose adjustment to assist in balancing the serotinin in the brain. Once it is better you might be able to rally your inner strength to assist in recovery of your mental health.
It's been a tough year for you and very few would be able to just soldier on with a smile. Let us know how you are going. Kath x - kmakmMemberYou know what @TripleNegMama, with @Joannie's words about treating myself at the front of my mind, I just had a 45 minute foot & lower leg massage. Hang the expense, I was just so sick of the ankle pain. So after making sure my eldest had things under control on the home front, for 22.5 blissful minutes on each leg, I couldn't feel the pain. Heaven. K xox
- TripleNegMamaMemberhope today is a better day - if there is things you still want to do then put them in your diary and book it in - use that 3rd week of the cycle to touch a dolphin, go whale watching or what ever it is that your heart desires - might not be able to do full day activities but do what you can - I spent 20 minutes in the water with a dolphin then had to sleep for 14 hours straight - but it was worth it. - do the stuff you love - if you want to go to the barrier reef then get yourself to Cairns - if you're not up to a boat ride and day out on the islands and the boat ride back - then get a chopper out and/or back - look for easy ways to do what you love. sending hugs!!!! hope you feel better soon.
- kmakmMemberThanks @Wendy55, you're an absolute darling. Bought a tear to my eye. K xox
- wendy55MemberHi @kmakm ,
Thank you for your kind words, I write from the heart,always have done,words are very powerful,we are all in this together and that's what I love about this on-line community so much, it doesn't matter where you live, what your circumstances are, only another woman who has walked in our shoes knows what it is like,we laugh together and cry together, and support one another 110%, its so unfair and so unjust that this happens to good people,
however, we know, that we do come out the other side, that day turns to night and yes, tomorrow is another day, and I live by the mantra whatever needs to be put off today can certainly be done tomorrow or the next day{housework is on top of that list}, you have been having a tough time of it as well lately along with @Pebbz1981 - I can only say to you as I have said before, one day, one hour at a time, breathe,and those awful feelings will pass, if I could give every beautiful lady here on this site a great big bunch of flowers I would, just know, even in our darkest hours that you are being thought of -
as Napoleon Bonaparte once said,
"Courage isn't having the strength to go on- it is in the going on when you don't have the strength
Big cyber hug and so wish I could give you and all the other ladies a shoulder to cry on.
Wendy.