Avastin
Is anyone out there with metastatic TNBC with skin Mets on chest wall using Avastin? could you tell me about your experience as this is about my last resort but onc doesn’t really give it a big wrap ...
Forum Discussion
Hello Kimee,
Whilst I cannot answer your question about Avastin, perhaps ringing the 1800 helpline number and speaking to one of the cancer nurses there would be a good idea, there are so many different treatments for this horrid disease, lets just hope that maybe someone else has had a similar expereince and can come up with some answers for you.
I am so very sorry to hear of your prognosis, it sounds like you have had various treatments in the past, I do know that TNBC is attracting a lot of interest and there are a few clinical trials around at the moment, we have a member called @TripleNegMama, perhaps she may have some encouraging words for you, I guess you have to listen to your oncology and treatment team and then just go with what your instinct tells you, there are no nice or pretty words that I can use to make this any better, I wish there were,do you have family support, and do you have someone to confide your fears to, BCNA have a service available for us mets ladies, her name is Dr.Carrie Lethborg, its a free service, she specializes in only cancer patients and if you want you can ring the 18000 number and make an appointment, she will ring you in your home at a good time for you, just google her name and you can find out about her, I have met her and I have talked with her several times and you could not wish for a more caring listening ear than hers, I dont know what more I can say, you have had a hell of a ride on this medical merry go round by the sounds of it,we all feel your pain, your fear and uncertainty,and if you want to use this forum as a means of asking questions or for support please go right ahead, there is always someone around,
even during the middle of the night in the Night Howls Discussion Group, we are all looking for that miracle, AND we can only hope that it will come sooner rather than later, its all we have to hold on to, never give up hope,
a big hug to you from me,
wendy55
Whilst I cannot answer your question about Avastin, perhaps ringing the 1800 helpline number and speaking to one of the cancer nurses there would be a good idea, there are so many different treatments for this horrid disease, lets just hope that maybe someone else has had a similar expereince and can come up with some answers for you.
I am so very sorry to hear of your prognosis, it sounds like you have had various treatments in the past, I do know that TNBC is attracting a lot of interest and there are a few clinical trials around at the moment, we have a member called @TripleNegMama, perhaps she may have some encouraging words for you, I guess you have to listen to your oncology and treatment team and then just go with what your instinct tells you, there are no nice or pretty words that I can use to make this any better, I wish there were,do you have family support, and do you have someone to confide your fears to, BCNA have a service available for us mets ladies, her name is Dr.Carrie Lethborg, its a free service, she specializes in only cancer patients and if you want you can ring the 18000 number and make an appointment, she will ring you in your home at a good time for you, just google her name and you can find out about her, I have met her and I have talked with her several times and you could not wish for a more caring listening ear than hers, I dont know what more I can say, you have had a hell of a ride on this medical merry go round by the sounds of it,we all feel your pain, your fear and uncertainty,and if you want to use this forum as a means of asking questions or for support please go right ahead, there is always someone around,
even during the middle of the night in the Night Howls Discussion Group, we are all looking for that miracle, AND we can only hope that it will come sooner rather than later, its all we have to hold on to, never give up hope,
a big hug to you from me,
wendy55