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Are you a member of the private Living With Metastatic Cancer group?
My name is Rachelle and I am based in Melbourne. I have MBC and joined the newly formed MBC Advisory Group to help BCNA, at this stage, with the revision of the Hope & Hurdles hardcopy guide and to inform BCNA of emerging issues affecting people with metastatic breast cancer.
I have also put my hand up to be a group leader of the private ‘living with metastatic breast cancer’ group to encourage people to share their experiences and support one another. I will also keep you informed of the advisory group activities and welcome your thoughts on the good things and gaps in care that you may experience in your local areas to share at committee meetings.I see that people are more active in this forum but I was hoping, along with BCNA, that we can transfer the activity to the private group, where people may feel more comfortable to be open with their posts/comments yet feel reassured that all posts remain private.
If you are not yet a member, please consider joining. If you are a member, perhaps you would like to post your story under the Stories announcement.
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- @Giovanna_BCNA have there been more people that have requested to join the group but are yet to be approved? Is anyone here still having trouble joining the group after visiting the link: https://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer and clicking on the Join button?
- I, too, am appearing to have problems joining this group. Hit the JOIN button, complete the question, but some days later, still nothing.
- Hi @RachelleRachelle -this is great to see you taking up this role. Thank you so very much and for your advocacy for us all. I haven't been on line for awhile as this group didn't seem to be getting much traction. I did try sometime ago. So thanks and will try to contribute a bit more from now on 😎
- Hi @Giovanna_BCNA
i know it’s been a while since this thread has been active but I have trouble to join the group too. Would you mind helping me as well? Thank you in advance💖 - @Palmbeachprincess
Hi! In response to your question here is the link
https://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer
on the right hand side of the banner you will see a button that says Join
Best wishes as you work your way through where you are at and hopefully it all settles soon - Hi, so rusty too.
How do I join this group? - Thanks guys
- Hello @Deebs I have sent you an invitation to join the private Living with metastatic breast cancer group.
- Deebs if you go to the groups section and click on join
- Not sure how to join this group could someone please invite me? diagnosed bc in June 2013 now Mets to bones July 2018 on Ribociclib letrozole and denosomab
