@Aggie thank you! My psychologist has said I'm taking things quite balanced.. Hopefully I can keep myself together.. Well I don't really have a choice when everyone is relying on you!
@AllyJay great way of putting it! Had a bit of a chuckle at your descriptions actually
@Sister glad you could see all viewpoints and the need to not have to keep everything silent either.
For me personally, I've been concerned about MBC long before my mum was diagnosed and these views I hold are not a gut reaction due to my current situation.
I've long followed MBC specific groups such as Metavivor, Metup and I adore Anne Silberman.. Follow her on Facebook with over 10k followers 'Breast Cancer? BUT doctor I hate Pink'. She has been dealing with mets for 8 years and on chemotherapy that entire time. She is real, raw and doesn't cover up the journey she has been on and above all recognises that she is an anomaly to survive so long whilst many of her pals haven't. She advocates for awareness, for more funding, more support. I love this woman. There's plenty out there across the world doing their best to change the landscape and I admire each and every one of them.
Here is Australia I personally think things are changing.. Slowly. I spoke to a few people from the McGrath Foundation. They have realised and acknowledged that MBC patients need a different kind of support. For the first time ever there are now 6 nurses dedicated to MBC who will be there right through to the end. Now that's something great in my view.
I'd love to get in touch with other women or men who see things similar. @Aggie you mention many other silent contributors who have been silenced in the past, I'm curious of this?
I have to say I've called BCNA before last year and they were very supportive with many of the things I was saying, as confronting and candid as the discussion was. I appreciated that.
One thing is for sure, I've learnt a lot from my mum. That you can have hope at the same time as being a realist. The glass is neither half full or half empty. It's just a glass with water in it.