@Mellyb, thank you doesnt seem quite the right word, however its all I can come up with, you have brought out in to the open so much that needs and yet is not discussed fully, yes, I have metastatic breast cancer, yes I will die, perhaps not from it, but with it, I have no prognosis other than statistics, I dont want a prognosis, but want to live for as long as I can - well -
I sat with both my mother and my father in hospice, one had non hodgkins and one had methosilioma, we did all we could and in the end it was a privelidge to sit there with both of them, I did not want either to go, however it was their time, nothing more could be done, and now its my turn, or will be in the distant future, you have opened up a conversation that is well and truly overdue to aggie, patty and zoffiel,thank you, we are all intelligent women on this forum, its just a pity that some of our doctors and treating specialists dont see that. This is the "system" we have and we have to make the best of it, however when women like your self and those I have mentioned plus all the other women and men on this forum start asking questions and want answers then maybe just maybe something may change.
You are a strong woman as is your mother,and yes 30 is a very young age to have to go through what you are now dealing with, I cannot take away your pain or your mothers, just know, that we, all of us here on the forum are with you, and as zoffiel said maybe, we can all be a part of the change that needs to happen.
wendy55