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A rock and a hard place
New to this type of thingy but here goes... Metastatic BC 12 years ago. Liver, lungs and bones. Given 12 months. Following chemo liver and lungs.. all good. Bones, different story! Been on herceptin...
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I wonder if antibacterial rinses and perhaps a creative soft palate removable appliance could help? For pain, maybe a small dose of radiation might help? This is not a frequent ailment so there are no hard and fast rules. See if you can get the specialists to think outside the box a bit. Hugz <3