A rock and a hard place
New to this type of thingy but here goes... Metastatic BC 12 years ago. Liver, lungs and bones. Given 12 months. Following chemo liver and lungs.. all good. Bones, different story! Been on herceptin...
Forum Discussion
Update.... decided to take a drug holiday. Feeling better, no joint aches, BP down to normal with no meds. ONJ (Osteonecrosis of the jaw) is really giving me the shits though.
Visited Max Facs specialist before Christmas. If cancer was active he would tell me to go home and "have red wine n cheese". Not sure if it is or not now with drug holiday.
Other option.... surgery to scrape away dead bone, putty (or the medical equivalent) placed in the hole it would create from gums to sinus and fit with dentures. Sounds better than the original option of removing maxilla bone completely.
Down side.... up to 5 procedures, 2-3months recovery after each and several months between surgeries. No guarantee of a quick fix, ONJ disease will continue to grow regardless and no guarantee of complications. At this stage, he's not selling it too me. That means possible 12-18+ months in and out of hospital with no real solution.
Really unsure what to do. Having just gone through the bushfire disaster, I'm still not sleeping well, feel constantly drained, no energy.
Endone is my new best friend but may have to graduate to patches.
Have an appt with Oncologist in 3 weeks so will have a chat and go from there.
Thanks for all the support. It meansva lot xo
Visited Max Facs specialist before Christmas. If cancer was active he would tell me to go home and "have red wine n cheese". Not sure if it is or not now with drug holiday.
Other option.... surgery to scrape away dead bone, putty (or the medical equivalent) placed in the hole it would create from gums to sinus and fit with dentures. Sounds better than the original option of removing maxilla bone completely.
Down side.... up to 5 procedures, 2-3months recovery after each and several months between surgeries. No guarantee of a quick fix, ONJ disease will continue to grow regardless and no guarantee of complications. At this stage, he's not selling it too me. That means possible 12-18+ months in and out of hospital with no real solution.
Really unsure what to do. Having just gone through the bushfire disaster, I'm still not sleeping well, feel constantly drained, no energy.
Endone is my new best friend but may have to graduate to patches.
Have an appt with Oncologist in 3 weeks so will have a chat and go from there.
Thanks for all the support. It meansva lot xo