Forum Discussion
kezmusc
7 years agoMember
The wheels fell off my rollercoaster.
It’s been a while since I’ve had a bout of the blues but the last week sure sorted that out. The worst one since a month after starting Tamoxifen round 1.
I’ve been coasting along quite well for a number of months. My head has been in a good space (or so I thought). The aches and pains are easing off a bit. Sleep is not too bad mostly. Hot flushes are down to annoying rather than atomic (unless I am working in the sun). The other side effects I have been ignoring because I am tired of thinking about them. Go with the flow and just let everything bounce off.
I’ve been sticking to my “say yes to all invitations” thing, so camping, catching up with friends once a month for dinner etc etc.
No scanxiety through the last two MRI’s, (excluding the cake incident but that was pissed off not upset) CT, another u/sound last Thursday and they throw in a surprise mammogram for good measure. Go through the motions, wait for the results, repeat in 3 months.
It’s been six months since I shed one tear over this shit fight or anything at all really. I decided that nothing that wasn’t a tragedy was going to bother me anymore. Life’s too short right? Yep, got it under control.
So WTF went wrong?????????????
A series of unfortunate events appear to have created a landslide.
The start is just a mix of stuff from lack of work (please, please rain) and money; to muttering FFS whilst picking up everyone's crap around the house and thinking about the mountain of maintenance the farm needs and no funds to do it. I lost my referral for the u/sound and had to chase up the BCN for another one the day before etc etc etc......Everyday normal stuff right?
I went to training at work for another section of the new digital system and had a complete brain malfunction. Apparently, it doesn’t want to work this day. I take nothing in and am still none the wiser. It’s ok, don’t worry, they will give you another training session. Come on brain, get back on board. Screw you HT.! FTS
So far I am keeping my shit together, but I can feel the slide starting. Ok do something for yourself. What? I cannot think of one thing that I really want to do. What will make you happy right now? Apart from winning the lotto I can't answer that question. Then it hit's me, I have done nothing for myself in months and I have no idea what is going to make me happy. Zero excitement.
In the words of Pink Floyd, I had become comfortably numb.
I've given up trying to learn the guitar because daily life got in the way, I sucked at it anyway and my wrists started to ache. So I am feeling pretty restless and agitated by now. I've slid back into normal boring habits. That was not going to happen! I was going to do differnt things.
Even my "say yes to everything" has been nothing of my choice. Apart from dinner with friends which I enjoy. I go camping because everyone else likes it, they've got me going to the Birdsville races, which is kind of cool but I hate road trips and I have enough, dust, dirt, horses, flies and critters here, plus it's a fucking logistical nightmare to leave this place. Oh, and guess who will have to organise everything?
All our girls went out the other night and we decided to take advantage of that and have a romantic night together. Hubby was trying to make me feel better.
Well, that side of things is like a disappointing birthday party these days so that was it. There was no coming back from the pitty party then.
Sad, tears and cloudy fog of doom for the week. I even banned myself from wine, and when that happens the world is about to stop turning or I know it's going to be a really bad idea to go down that road.
Thanks for listening lovelies.
Feeling better now.
xoxoxoxo
33 Replies
- kmakmMemberExcellent news @iserbrown. What a relief!
- kmakmMemberGarrgh, bloody hell @kezmusc. Stupid f*****g rollercoaster. I wish you could get a refund...
- arpieMemberThat's a bugger @kezmusc. All the best for your next tests. Hugs coming your way xx
Well done on getting a gynae onc, @iserbrown & the shrinking ovaries.
- iserbrownMemberThat's why I picked up a Gynaecology Oncologist, thickening of the endometrium and high risk for uterine cancer. My symptoms were directly attributed to Tamoxifen. I have been his patient for a couple of years now and did my mandatory time on Tamoxifen, then Letrozole and now Aromasin. Last ultrasound showed my ovaries had shrunk! Yay! Fancy being excited about shrinking ovaries! Hence, it all helped us to conclude, as I said in a different post to this, the hurdles of BC and our decision to retire, even though we are not retirement age! Stress plus is not needed!
- kezmuscMemberYes, the perpetual loop. It does cycle around in your head. It's rare that there is not a conversation streaming through my brain, either from the forum, overheard at work or just randomly at 2am for no particular reason.
I am sorry about your friend @Zoffiel. I am sure you will rally to the occasion and be an incredible support to her.
Have fun in the wood pile. Considering I did bugger all last week I have plenty to keep me occupied and catch up on at the moment. Busy normally works for me as well. So does smashing stuff LOL
Results are back from CT, U/S and mammo. No changes to the mystery alien thing in the breast, but hello endometrial thickening and ovarian cyst. Apparently about a 40% hit rate for this while taking Tamoxifen so I've just been told. Didn't know that one. Add that side effect to your list too @arpie. Blah.
So ya fucking hoo, lets go for a pelvic and vjj ultrasound! Geez I wish I could grow enough balls to just flick this drug. Not yet though.
Does anyone ever think how bizarre it is to be scared of your own hormones that were put there for good reason???? I find it quite absurd really.
AAgggghhh stop the world I want to get off. :) - ZoffielMemberI finished two years ago as well @Milly21
I think about cancer most days. Hanging out here probably isn't going to help me stop doing that. For me, there is a difference between thinking about cancer and worrying about it. It's everywhere. In the news, fund raising, people you know, advertising....
I suppose Ive taken the approach that I can't avoid it so I might as well stop trying. If I'm going to get 'triggrered' every time I see someone wearing a daffodil broach or walking down the street in a two year old Relay For Life top or wearing an ill fitting wig or a turban while sporting no eyebrows, I'm doomed to a life of perpetual anxiety.
Personally, Im hyperaware of every new ache or pain or any noticeable change in my body. That will never change, so I might as well stop worrying about that too. It's still stressful, but there is nothing to be done but try to live the best life I can.
I've got a date this mornng with a friend who's just found out her cancer is back. I'm finding that prospect a little challenging but this is not about me and while I'm feeling quite stabby right now I'll have to get over that in the next hour or two. It's not helpful for either of us.
I'm going to go for a 'jalk' then spend a bit of time smiting the wood pile. I'm so pissed off about all the things this disease has taken from me--its killed my friends and taken my freedom, destroyed relationships and completely fucked over my finances and my career. But what can we do? I try to channel my anger into doing something constructive but I'm not very good at it. Practice will make perfect? I live in hope. Mxx - kmakmMemberChat with a counsellor or your breast care nurse @Milly21? If you're feeling that you're stuck in that particular thought groove it might help move the needle on. K xox
- Milly21MemberIt’s interesting I was never a very emotional person before cancer,now I can cry or get emotional at drop of a hat,watching news ,song on radio anything,I’m not sure if it’s hormonal treatment or I’m still a bit of a mess,finished treatment 2 years ago and still think about the cancer daily, not sure if that’s normal,probably several times a day.
- kmakmMember@Silba Sending you a big virtual hug. Will you be in Melbourne for our lunch? K xox
- SilbaMemberPS :Can't do the cruise , get seasick on a ferry......
But all you ladies can enjoy for me ....