Forum Discussion
lrb_03
7 years agoMember
Hi, @Nadi. Sorry to hear you've developed lymphoedema. Lymphoedema can occur any time after damage to the lymphatic system, even 10 or 15 years later. Only having sentinal nodes removed reduces the risk, but doesn't eliminate it, unfortunately. I had neoadjuvant chemo, incuding docetaxol, a different taxane. My lymphoedema developed 6 weeks after my surgery, going in to my first sleeve the day that I started radiotherapy. Been in it ever since.
I'm co-coordinator of a local lymphoedema support group in the ACT. We meet once a monthl, mostly on a Wednesday morning but 3 oror times a year we have evening catch ups. We are, quite simply, a group who get together to support each other, and exchange ideas about how best to look after ourselves, our skin, our garments. We have a FB presence, search Canberra Lymphies or pm me and I'll give you our email address. Also happy to catch up one to one if that helps.
Take care
I'm co-coordinator of a local lymphoedema support group in the ACT. We meet once a monthl, mostly on a Wednesday morning but 3 oror times a year we have evening catch ups. We are, quite simply, a group who get together to support each other, and exchange ideas about how best to look after ourselves, our skin, our garments. We have a FB presence, search Canberra Lymphies or pm me and I'll give you our email address. Also happy to catch up one to one if that helps.
Take care