@Afraser I was in denial for a bit. Tried to convince myself the swelling, heaviness and ache was arthritis until it got a lot worse and much more noticeable. I never knew it was possible to get it so long after surgery. My op was Nov 2015 so just 3 and a bit years ago and I only had sentinel nodes removed so I thought I would never get it. Didn't know it come years and years after surgery and there's still a risk with SNB removal if you've had taxol and radiation to armpit. Learning a lot.
I have a great lymphoedema specialist. Getting my compression sleeve and glove tomorrow. Looking forward to getting rid of the ache and swelling. Not sure how I am going to go with the sleeve when I still have so many hot flushes.
