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StarGirl's avatar
StarGirl
Member
3 years ago

Tamoxifen etc Side Effects Spreadsheet

Hello ladies, a while back someone posted a spreadsheet listing a whole lot of different hormone blocker type medications and their side effects, compiled from anecdotal evidence from ladies actually taking the medications. Does anyone else remember  this? If anyone has it could you please repost? Thank you so much, Star xx
tamoxifen

2 Replies

  • arpie's avatar
    arpie
    Member
    3 years ago
    @StarGirl - I am SO glad you found it!!  hehe, it has even turned up on a Facebook Page that related to AIs too!!

    Luckily - MOST OF US don't get ANYWHERE NEAR any or all of these ..... 

    With a bit of luck, members will only get a couple of these side effects & hopefully not too badly ... and some lucky buggers won't get ANY side effects!  Grrr I am SO jealous of THEM!   

    My main pain areas are hands, feet, hips & knees .... but coming from an arthritis background, the AIs have just made them worse (specially the hands and feet.) :( 

    IF you find the side effects are impacting your lifestyle too much - make sure you see your Onc about either having a break or changing to a different AI.  I started on Letrozole (6 weeks), then changed to Exemestane (6 months) & have now been on Arimidex/anastrozole for nearly 4 years now ... so likely to continue it for as long as suggested .... 10 years!

    take care xx
  • StarGirl's avatar
    StarGirl
    Member
    3 years ago
    I found it! Originally posted by @arpie in about 2019. I have tried to attach it here for anyone else who might find it useful. Thank you @arpie for the original share.