Has anybody else had this happen. ??????Now I am booked in to see a gynecologist / also is oncologist in his field ,as my GP says that the Tamoxifen tablets have cause Endometrial thickness now measures 9mm ,has gone from 4mm to 9mm in just 6 months, and there is a chance to get endometrial cancer, so I am thinking he will want me to have a hysterectomy NOT HAPPY JAN !!!!! I checked and it says in the side effects of the tablets, that it is a side effect. My GP rang my oncologist but he wants me to stay on the tablets. 🙁 Really concerning as you are damned if you do and damned if you don't

arpie said: Oh BUGGER BUGGER BUM @ChezaH! Sending BIG HUGS xxxx. Can they do a biopsy on the lining to double check? That is not what you wanted to hear .... I had read somewhere that Tamoxifen can do that .... but I don't think it is very common.Hopefully it is this: Endometrial hyperplasia is a condition of the female reproductive system. The lining of the uterus (endometrium) becomes unusually thick because of having too many cells (hyperplasia). It's not cancer, but in certain women, it raises the risk of developing endometrial cancer, a type of uterine cancer.All the best with your gynaecologist appt .... ask them about continuing to take the tablets ..... Thinking of you xxxx Thank you I will certainly be asking questions xx

You'll be fine! You've got our experience to draw on!Best part for me, and who'd thought, I was so delighted when I was told my ovaries had shrunk!

FLClover said: That’s a major bummer Cheryl. One of the main reasons I never want to go on Tamoxifen is cos it causes heavy periods, and I’m still on mine, and cos it can cause endometrial cancer. In short, it messes with your uterus. But as the ladies have said, it’s probably hyperplasia at the moment. My friend, who is 42 and had bc in 2017, is on T and is going through check ups right now for the same thing. Is there absolutely no way for you to be transferred on to an aromatase inhibitor?? They generally don’t give this side effect, and are also a little more effective in preventing recurrence. Why isn’t your onc switching you to one of those, have they told you? And can you get a hysteroscopy instead? Sending you a big hug 🤗♥️ Thank you, My GP rang my oncologist but he wants me to stay on Tamoxifen, so when I see the gyno/oncol I am waiting to see what he says first then maybe go back to my oncologist not sure yet xx

FLClover said: That’s a good idea. Have your gyn onco tell you what they think, then make a decision with your onc based on that. Hope it sorts out smoothly and gently 🍀 Thank you

Hi @ChezaH,Yes, me too. Endometrial hyperplasia caused by Tamoxifen. Hysteroscopy. Nothing sinister. Went away once I changed to Letrozole tablets and Zoladex injections.

Tamoxifen - Endometrial Cancer | BCNA Online Network

15 Replies

ChezaH
Member
4 years ago

Dory65 said:

Hi @ChezaH,
Yes, me too. Endometrial hyperplasia caused by Tamoxifen. Hysteroscopy. Nothing sinister. Went away once I changed to Letrozole tablets and Zoladex injections.

That was good , but my oncologist does not want me to change from Tamoxifen 😢
Dory65
Member
4 years ago
Hi @ChezaH,
Yes, me too. Endometrial hyperplasia caused by Tamoxifen. Hysteroscopy. Nothing sinister. Went away once I changed to Letrozole tablets and Zoladex injections.
ChezaH
Member
4 years ago

Stork said:

I have been on Tamoxifen for 4 years
every year I have a ultrasound at a women’s radiology clinic
Lsst week I had my annual ultrasound
my results was reviewed by a specialist gynaecologist at the time of the exam and was told my results were normal for my age and my medications
One day later I saw my oncologist and was advised to keep on taking the tamoxifen for one more year might change next year
I am happy and confident with the advice I have received
Best wishes Stork

Thank you
ChezaH
Member
4 years ago

FLClover said:

That’s a good idea. Have your gyn onco tell you what they think, then make a decision with your onc based on that. Hope it sorts out smoothly and gently 🍀

Thank you
Stork
Member
4 years ago
I have been on Tamoxifen for 4 years
every year I have a ultrasound at a women’s radiology clinic
Lsst week I had my annual ultrasound
my results was reviewed by a specialist gynaecologist at the time of the exam and was told my results were normal for my age and my medications
One day later I saw my oncologist and was advised to keep on taking the tamoxifen for one more year might change next year
I am happy and confident with the advice I have received
Best wishes Stork
FLClover
Member
4 years ago
That’s a good idea. Have your gyn onco tell you what they think, then make a decision with your onc based on that. Hope it sorts out smoothly and gently 🍀
ChezaH
Member
4 years ago

Cath62 said:

Sorry to hear you are going through this @ChezaH. As if you have not been through enough already. I am in tamoxifen but I had a hysterectomy some years back. I had tge choice of AIs or tamoxifen and am on tamoxifen because of the joint pain issue with AIs. I hope this is nothing sinister for you. Sending hugs. 🌷

Thank you xx
ChezaH
Member
4 years ago

FLClover said:

That’s a major bummer Cheryl. One of the main reasons I never want to go on Tamoxifen is cos it causes heavy periods, and I’m still on mine, and cos it can cause endometrial cancer. In short, it messes with your uterus. But as the ladies have said, it’s probably hyperplasia at the moment. My friend, who is 42 and had bc in 2017, is on T and is going through check ups right now for the same thing. Is there absolutely no way for you to be transferred on to an aromatase inhibitor?? They generally don’t give this side effect, and are also a little more effective in preventing recurrence. Why isn’t your onc switching you to one of those, have they told you?
And can you get a hysteroscopy instead?
Sending you a big hug 🤗♥️

Thank you, My GP rang my oncologist but he wants me to stay on Tamoxifen, so when I see the gyno/oncol I am waiting to see what he says first then maybe go back to my oncologist not sure yet xx
Cath62
Member
4 years ago
Sorry to hear you are going through this @ChezaH. As if you have not been through enough already. I am in tamoxifen but I had a hysterectomy some years back. I had tge choice of AIs or tamoxifen and am on tamoxifen because of the joint pain issue with AIs. I hope this is nothing sinister for you. Sending hugs. 🌷
FLClover
Member
4 years ago
That’s a major bummer Cheryl. One of the main reasons I never want to go on Tamoxifen is cos it causes heavy periods, and I’m still on mine, and cos it can cause endometrial cancer. In short, it messes with your uterus. But as the ladies have said, it’s probably hyperplasia at the moment. My friend, who is 42 and had bc in 2017, is on T and is going through check ups right now for the same thing. Is there absolutely no way for you to be transferred on to an aromatase inhibitor?? They generally don’t give this side effect, and are also a little more effective in preventing recurrence. Why isn’t your onc switching you to one of those, have they told you?
And can you get a hysteroscopy instead?
Sending you a big hug 🤗♥️