Forum Discussion
Nerlynx
I am Her2+ and E+. I have just finished 12 months of chemo, radiation, last Hercepton on Thursday and ongoing Letrozol. Adding Nerlynx to the list of treatments has been an option for me however my on...
Hi @PV123,
Sorry, have just checked in after about 1 month. I have had my ups and downs with Nerlynx. I started on 3 for one week, increased to 4 for one week and have been on 6 for two weeks now. I am very quickly learning what I can and cant eat. I had very bad brain fog and dizziness but that has disappeared. I also have had to take anti nausea a few times. The general feeling crappy has been the worst. I have managed the D really well, taking 2 Gastrostop in the morning and 1 at night. I have also taken the odd extra one at night time if I have needed it which has been about 4 times so far. I have now cut out the night one altogether as I feel I don't need it but wont hesitate to take it if I need to. However, I think I have turned the corner. For the last couple of days I am feeling better. Certainly not feeling on top of the world but it is doable and I think for me the benefits of taking it outweigh the side effects. I have found the pharmaceutical company who send me the nerlynx wonderful. I can ring them anytime and they check in every week.
The pharmacist have recommended the probiotic Life-space Triple Strength which I take every day. My doctor has also advised me to take Caltrate for my bones and 1000mg of Vit C and mega zinc 40mg for my immune system as I ended up with a boil, cold sores and a rash. I had to have a dose of antibiotics for the boil but all good now, everything has healed and feeling so much better. Hope this helps. XX :)
Sorry, have just checked in after about 1 month. I have had my ups and downs with Nerlynx. I started on 3 for one week, increased to 4 for one week and have been on 6 for two weeks now. I am very quickly learning what I can and cant eat. I had very bad brain fog and dizziness but that has disappeared. I also have had to take anti nausea a few times. The general feeling crappy has been the worst. I have managed the D really well, taking 2 Gastrostop in the morning and 1 at night. I have also taken the odd extra one at night time if I have needed it which has been about 4 times so far. I have now cut out the night one altogether as I feel I don't need it but wont hesitate to take it if I need to. However, I think I have turned the corner. For the last couple of days I am feeling better. Certainly not feeling on top of the world but it is doable and I think for me the benefits of taking it outweigh the side effects. I have found the pharmaceutical company who send me the nerlynx wonderful. I can ring them anytime and they check in every week.
The pharmacist have recommended the probiotic Life-space Triple Strength which I take every day. My doctor has also advised me to take Caltrate for my bones and 1000mg of Vit C and mega zinc 40mg for my immune system as I ended up with a boil, cold sores and a rash. I had to have a dose of antibiotics for the boil but all good now, everything has healed and feeling so much better. Hope this helps. XX :)