Nerlynx

Hi @Pascoe, I was given this medication after I finished 15 months of treatment for stage 3 grade 3 triple positive bc. I was lucky and my oncologist was able to get it for me on compassionate grounds. The Neranitib made me feel sicker than any of the other treatments i went through ( i was lucky and had very few side effects from both AC and taxol chemo's) I felt nauseated, the inside of my stomach constantly ached and I had gone from enjoying my life and getting better to feeling worse than I did when I had cancer. Each of us is different and responds differently to medications and treatments but knowing how this med made me feel there's no way I'd pay for it. I lasted 3 weeks on this med and have a pretty high tolerance threshold. Working also was extremely difficult especially when the waves of gastro hit, 8 gastro stop tabs a day didn't help much. I believe we all should try whatever possible to help stop a reocurrence but not at the expense of quality of life or financial strain. Sadly my cancer returned in March last year, do I think taking Neranitib for 12 months would've stopped it, I'll never know but 1 thing I do know is I'm glad I didn't waste a good 12 months feeling awful only to get rediagnosed. Wishing you all the best in whatever treatment path you choose
Kat x