@kmakm It's a rude shock alright. I just assumed that I would get "better" after all the active treatment was done. It never even crossed my mind that this would not happen.
@melclarity Totally agree with the "they are only there to treat you" along the guidelines. So I am not really sure what else they can do. This is what we have, take it or not......hopefully it gets you on our 5/10 year survival stats. Blah.
I no longer expect anything else. It is my choice to deal with or tweak and manipulate the drugs or bail out.
What I do expect is that more study is done on how to improve these drugs that have been on the market for decades and for them to actually do something with the information that thousands and thousands of people give them. It's not like its a minority group. Facebook is littered with support groups specifically for people on hormone therapy. All with the same complaints.
The compliance rate would be far greater if we had accurate information as to what we can and can't take to help with the side effects, not the "we don't know so you better not". For example, my best friend had an oopherectomy a few months ago for other reasons not BC. She is 44 so the early menopause thing kicked in hard and fast. She has been taking remifen and within a week her hot flushes all but stopped. Within a month, the mood swings were gone.
So sick of being concerned to take this, scared to do that all "in case" it has some interaction with the HR. Jeesus I am reluctant to take vitamin C incase there is something lurking in there and I give it super powers. Aaaaggghhhh.
There's no point if they're sitting around going "Oh yes, well we understand it sux" but not do anything to provide accurate information and realistic every day things we can try.
