@LucyE your comment about the doctors using the “ well at least you’re still alive” throw away line is so true. I’ve recently been told that chemo has in fact damaged the mitochondria in every cell in my body and thus my side effects including cardiomyopathy are irreversible and progressive. On hearing this I commented that if I had known then what I know now, I may have chosen a different path from chemo and that is when I got the “ but without it you may have already been dead” line. It’s ironic really that the one thing that was meant to attempt to save my life might eventually cause my demise anyway. My biggest regret is that I didn’t find out all of the information and ask questions at the start. I was diagnosed and began neoadjuvant chemo within the week so was in a daze and did not do any research. At the end of the day it is always our choice and the only way to make a truely informed decision is to have as much good quality information as possible to guide us.
Thanks @jennyss for starting such a good conversation. It’s been great to read everyone’s experience and thoughts on the topic.
