Letrozole - aches and pains continue
Last year I was switched from Tamoxifen to Letrozole. At first I was feeling okay on the Letrozole but then I had a post menopausal heavy bleed (thats a whole other story), so had a medication holid...
Forum Discussion
Hi!
I was on letrazole from Feb this year and stopped taking it three weeks ago as I fell into a deep, deep depression (as in, I wanted to leave my husband and kids and was very , very low). I have no previous anxiety or depression. It took around 10/11 days to feel like myself - what a difference!!
I am now one week into Exemestane. So far so good - but it is early days.
oh and the joint pain is insane. In.Sane.
Hi deekay77. It's been 4 months since you wrote that post. Are you still on Exemestane? I'm on Letrozole and it's upsetting my diabetes. I'm now on insulin, which I've never been on before. I'm very weak and it's not getting better.
Can you please let me know how you are going now? TIA
Kirsten xx
Hi Kirt
yes, I’m still on Exemestane. I’m still getting aches and pains but nothing like I had with Letrozole. I can sleep through the night without being woken from the pain - so that is a win.
I’m sorry to hear that the Letrazole is impacting you and your diabetes. I see that Arlie has replied -I hope some of their advice is helpful to you.
My oncologist has been really great and has provided me with several alternatives when I have had bad experiences with meds. I hope you get the same care and support from your medical team xxHi Kirt
Sorry to hear the AI meds are mucking with your diabetes! Have you spoken with your Diabetes Educator recently about it or are you just going thru your GP? My husband was going thru chemo & had to go onto Ozempic (when previously he had only been on tablets.) Can you also speak to your Breast Care Nurse and Onc about it. it is not good that you are feeling weak & not getting any better. xxI am Sorry to see you join the club that no-one every thought they'd be joining 🙁. You've found the right spot here tho, for support & info from those who've 'been there, done that'! So hopefully we'll be able to smooth the way for your own story. Make sure you take a trusted friend or family member with you to your appointments, as a 'backup set of ears', as it is difficult remembering everything that is said. Also, consider recording your sessions on your phone, so you can go over it again later, for the same reason. 😉
Mine was ILC - I was lucky to only have the one lumpectomy, rads & tablets .... and have recently finished with the tabs now!
Don't forget - you can whack up ANY question - remember there are NO dumb questions!!! This diagnosis can really muck with your brain too - so if you feel sad, angry, distressed .... ask your GP (or your treating team) for a referral to see a counsellor .... or ring our Helpline here on 1800 500 258 (Mon-Fri 9-5) for a confidential chat.
I'd suggest you also listen to Charlotte Tottman's podcast (link below).
She is a BC specialist counsellor who was diagnosed herself, and had a double mastectomy, so knows EXACTLY what we've all been thru, both emotionally and physically! Her own reaction to her diagnosis was also quite different to what she 'thought' it might be, given that she'd been counseling women's reactions for some years before, so thought she 'new' what to expect! She is VERY easy to listen to, too xx
http://www.drcharlottetottman.com.au/my-podcast.html.
There is HEAPS of info in the link below to help you navigate the blog and also some tools to evaluate your own physical and mental recovery thru your ongoing treatment! xx.https://onlinenetwork.bcna.org.au/discussions/general-discussion/a-big-welcome-to-all-new-online-network-members-/222737
Take care & all the best for your surgery & ongoing treatment xx
