Geez and can relate to all of these comments! @Abbydog I wish I could offer you some amazing advice, but I am in the same boat as you. I started on Femara in August 2020 and really tried to convince myself that I would not get SE - 6 weeks later and boom! I tried to just hang in there but my onc is so great, he was pretty determined that I try something else as he wanted me in it for the long haul.
I started a generic Anastrozole at the start of 2021 and my feet are soooooo stiff in the mornings but get better with movement. Imagine the Tinman needing oil and that’s me getting out of bed or standing after a lot of sitting. I had to get a new script the other day and I am giving the brand name Arimidex a go and I am hoping there may be a difference. The onc said there is no difference in the active ingredient but the fillers are different - we’ll see.
@Sister I also had ILC so I am very determined to stick with the AI. My onc is worried that one day I will just throw the towel in so he really wants me to have a bit of a play around with it to find something that has the least SE. Interestingly he would really like me to have a 4 week break and then give tamoxifen a go - less reports of aches, better for the bones. I told him I was worried given the ILC and he said that ‘yes AI’s are a bit better, but tamoxifen is still a very good option and worth it if it means less SE and more chance I will stay on it for a really long time.’ He also said that the 4 week break will give me a chance to see if it is just part of getting older or is actually the AI.
I would welcome any ideas/suggestions about anything that may help. Thank you everyone for your responses - it’s good not feel alone, but I wish there was a solution to this.