Kisqali/ Letrozel exhaustion

Letting your doctor know about anything that is unusual for you is always a good idea. Hang in there, this shit is exhausting.

Hi @MeganM,
You certainly took a lot on yesterday! gym and going back to work! as @zoffiel said anything unusual let your doctor know, although a good guess would be just organized for work and going to the gym would have tired you out, I do know that the combination you are on does cause fatigue, however we all respond differently to the drugs we are on, there are several ladies in the metastatic group who are on the same drugs as you, perhaps they might read this and put up a post about how they are going,try not to put too much on yourself,going to work full time and doing metastatic breast cancer is a hard enough gig as it is!
wendy55

Thanks @Wendy55 and @Zoffiel For your sound advice which I’ve mostly taken.

My McGrath Nurse said that it’s probably an accumulative effect of the drugs as the tiredness as been for most of the 3rd cycle. I’m going to revert to taking the Kisqali at night to see if this gives me more energy and go easier on the exercise. 

Hi @MeganM, I've been on the same combination as you for the last 13 months, most days I'm OK, but once a month or so, I get a couple of days where I just need to rest up completely, your bp was pretty low though, I'd mention that to your onc next time you see him/ her. This combination is quite easy on me at least, I have found that taking it after my evening meal seems to work best. Maybe ease back into exercise a bit more slowly.

Keep sn eye on tbe BP and let your treating team know about this dide effects. I was having heart issues which resulted in my BP plummeting. It resolved with help. Kath x

Hi @MeganM

..letrozole alone can be fatique Inducing especially after exercise and joint pain can result and i have noticed that humid warm weather also has this affecteven post meno .perhaps with work learn to pace yourself  avoid excessive before starting a lot of uswith mets mbc have to learn the ..be gentle mantra
Yoga,swimming and walking are our friends
All the best 
Bright in hope

@brightspace thanks you are right I am struggling with accepting the new normal..grr that said yesterday was much better today so so but definitely not as bad as when I wrote my post. Hoping it was just the heat...but will discuss the issue including the heat with my medical team

Looks like the exhaustion is linked to low blood pressure. CancerFit gym take my blood pressure before I do my exercises and it was again 80/58 but better after fluids. So I know I have to massively increase my fluids which is helping with the tiredness 

Just thought I’d let you know that I am feeling much better since increasing my fluids to around 3 L a day if I’ve been to the gym or 2 L otherwise. Basically every time I feel tired I drink 500ml. Sounds a lot and it is but it’s working Yahoo! 

@MeganM Hooray!!