Forum Discussion

Jan77's avatar
Jan77
Member
9 years ago

Joint and Tendon pain after Chemo and while on Herceptin

My first post - I am interested hearing if anyone has experienced joint and tendon pain from Chemo/Herceptin. This is not pain during or just after treatment but rather is seems to be accumulative... getting worse every day for the last couple of months. 

I have horrid pain in my elbow joints, wrists and thumbs which is impeding movement and ability to lift and grasp. I have been told that Herceptin or Chemo are not the cause (or at least would be on the bottom of the list). When I read blogs to read first hand experiences, joint pain seems quite common (and debilitating) and that oncologists are always negative about the drugs being the cause.

I thought it must be Herceptin as that is the only drug I am on now and it has been getting progressively worse since finishing chemo in June, but then I heard that it may well be a catch-up from Chemo... arrgghh

Any feedback or experiences would be appreciated.

Of course am doing the whole testing thing again to be sure....

Thanks, Jan

Background:

Doxetaxel & Carboplatin with Herceptin 7th April - 3 weekly

Changed to Paclitaxel (Taxol) with Herceptin - weekly doses  26th May  (complications from chemo)

Finished Chemo early on 2nd June due to neuropathy

Continued with 3 weekly Herceptin since then 

14 Replies