Forum Discussion
arpie
4 years agoMember
@RipleyandJones - I am so sorry that you are feeling down - what you are feeling it totally 'natural' - but you don't want it to get a hold, longterm. Maybe give our Helpline a ring (in the blue banner at the top of the page) or Speak with your Breast Care Nurse (if you have one) or your Onc or Rad Onc - they should be able to put you onto someone to talk to you about coping mechanisms. Your GP may be able to put you onto a counsellor too ....
The first few months since diagnosis is just a whirlpool, one appt after another, then the surgery, recovery, possibly chemo - then after radiation finishes .... NOTHING ... it's almost like "Well WTF do I do now?" .... My wheels fell off in the middle of Rads (for a few reasons) and I just blubbed for days. :( Don't be too hard on yourself - both mentally & physically, you've been thru the mill ....
Sadly, this bloody disease just keeps on giving and sometimes, the AIs/Tamoxifen can cause the body to ache, specially if you come from an arthritis background .... Tamoxifen is the only AI that I haven't tried - but is supposed to have the least side effects!! I had already been thru menopause when diagnosed, & was lucky & only had the odd hot flush ... but they can be debilitating in themselves! I am guessing you are 'younger'? Have you not gone thru Menopause yet? If you fill us in on some details of your treatment so far .... members may also be able to chat with you about their similar experiences xx
If you add your town/city to your profile, members may be able to point you to specific services in your area too ....
Check out this post - it is a well known psychologist, chatting about her OWN experiences last year when she was diagnosed with BC herself. NO-ONE understands what you are going thru, if they haven't been thru it themselves.
https://onlinenetwork.bcna.org.au/discussion/23866/podcast-series-upfront-about-breast-cancer-what-you-don-t-know-until-you-do-with-dr-charlotte-to/p1
Also, this UK Breast Surgeon who was diagnosed & then had a recurrence as well - she did not have an easy time of it.
http://liz.oriordan.co.uk/
Take care, lean on us .... we've got broad shoulders xx
The first few months since diagnosis is just a whirlpool, one appt after another, then the surgery, recovery, possibly chemo - then after radiation finishes .... NOTHING ... it's almost like "Well WTF do I do now?" .... My wheels fell off in the middle of Rads (for a few reasons) and I just blubbed for days. :( Don't be too hard on yourself - both mentally & physically, you've been thru the mill ....
Sadly, this bloody disease just keeps on giving and sometimes, the AIs/Tamoxifen can cause the body to ache, specially if you come from an arthritis background .... Tamoxifen is the only AI that I haven't tried - but is supposed to have the least side effects!! I had already been thru menopause when diagnosed, & was lucky & only had the odd hot flush ... but they can be debilitating in themselves! I am guessing you are 'younger'? Have you not gone thru Menopause yet? If you fill us in on some details of your treatment so far .... members may also be able to chat with you about their similar experiences xx
If you add your town/city to your profile, members may be able to point you to specific services in your area too ....
Check out this post - it is a well known psychologist, chatting about her OWN experiences last year when she was diagnosed with BC herself. NO-ONE understands what you are going thru, if they haven't been thru it themselves.
https://onlinenetwork.bcna.org.au/discussion/23866/podcast-series-upfront-about-breast-cancer-what-you-don-t-know-until-you-do-with-dr-charlotte-to/p1
Also, this UK Breast Surgeon who was diagnosed & then had a recurrence as well - she did not have an easy time of it.
http://liz.oriordan.co.uk/
Take care, lean on us .... we've got broad shoulders xx