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Brenda5's avatar
Brenda5
Member
7 years ago

Hormone therapy, it will be ok. :)

I have done 2 years of Tamoxifen and I lasted 3 months of Letrozole. 
In all that time I have been unable to work and have been too lethargic to do much at all.
Yes I was one of the few who had pretty bad side effects and it was really getting me down.
I was thinking is this my whole life now? This aching body, is it permanent?
Well I have gone off the Letrozole for three weeks. Only a couple of days in to it but I have energy! The aches are gone! I feel fan-flaming-tastic! I am gonna be ok. <3
  • Hi @Brenda5, I'm still relatively new that this (diagnosed Stage 4 last Oct), but I found if I take the Letrozole in the mornings I'm cactus and extremely fatigued all day. If I take them in the evening, I don't have any of those issues and I can get thru a day without fatigue. Just a thought... :)

  • It's worth taking the break to get an idea of what is achievable when it comes to 'normal'. Mentally, that was a big thing for me. I needed to know what misery I could attribute to the AI and what was  a consequence of dragging myself through another round of treatment, ditching my ovaries and just getting older.

    Now I know that if I stop taking them there will be an improvement in my general well-being except, of course, my chance of having another episode increases. So,the deal with myself is that I will tolerate the side effects for as long as I can. There is a way out if it all gets too much which is a strange comfort, but comfort none the less. I have found Exemestane to be less of a problem than the other two, but it wasn't my oncologists first choice and I'm not pleased about my new, distinctly middle aged waistline.
  • My oncologist did tell me if the hands got too bad, to go off it for a month. He didn't mention the feet which is where it hit me. I figure 3 weeks is OK off it and I am taking CBD oil in the interum which should provide a bit of a cancer buffer.
  • That's wonderful @Brenda5.

    How's the risk assessment voice in your head going? Ie, if you have a recurrence, will you be OK with pulling the pin on the hormone therapy now? I don't want to rain on your parade! Just curious about where you are within yourself on this topic. K xox 
  • That's fantastic @Brenda5.  Gives you a bit of a buzz off these drugs for a bit doesn't it?

    Hugs
    xoxoxox