Exemestane, anyone had this?

I hadn't tried exemestane.  I had tried Arimidex and Letrozole, then back to Arimidex.  

Do speak up and see what options or suggestions are available for you.

Hi @arpie, thanks for your input, the oil used to work better, I'm on around .4 of one ml, and the same with the one I take in the night. I'm also now finding getting to sleep harder, I was also taking 2mg of Melatonin, but am wondering if I've been having it too long, I heard it can do the opposite if taken too long ( I've been on it about 3 mths)
Maybe I should contact the medicinal cannabis oil doc again?

Hi @Keeping_positive1, thanks for your advise, I will be talking to my specialist about the brain fog, infact on Monday I may contact my breast nurse, she may have some suggestions. Can you tell me which hormone blocker you were on? do you mean it affected your memory?
Thanks x

If your memory is so bad to the point that your safety is at risk then I suggest you address this concern with your oncologist.  I don't accept that it should go with the territory of being on hormone therapy treatment.

I also put up with other side effects, including brain fog while going through chemo treatment  but the memory loss on an AI for me was out of this world!    I sympathise with you and please get this addressed by your oncologist.  They may have good suggestions for your individual needs.  I also was diagnosed with hypothydoism, which also may have exacerbated my symptoms being on two different hormone therapies for two different reasons.  Lots to consider.  

Wishing you all the best.

How often are you taking the oil @Cindi?   You could increase the dose a bit too .... as everyone is different in their needs.   Possibly try a stronger one next time?  

'Brain fog', sadly, is par for the course for all different reasons - the stress & pressure of the whole diagnosis, tests, scans, surgery, chemo, Rads & Tabs ..... it DOES get better tho! xx

Check out the webinar this week - log on to register & put a question forward - if not convenient on the day, you can watch it later:
https://onlinenetwork.bcna.org.au/discussion/26217/are-you-experiencing-pain-following-treatment-join-our-free-webinar-next-wednesday#latest

take care

Hi All,

As I mentioned before, I'm on exemestane hormone blocker and sides are really showing themselves now, I'm getting quite tired a lot and the body aches ( getting worse) aren't good now, the CBD oil isn't helping as much anymore, I can handle the hot flushes, but my memory is really struggling, it's the worst side, and also my hair is falling out a lot.

I see my specialist next month so I guess I'll tell him and try another type?
 Does anyone have any input on this?
 I can put up with lots of sides but the brain fog is horrible, and I'm retreating from conversations with people because I forget so much. HELP!!

Hi, letting you all know the Hormone blocker Exemestane sides have settled down.
Just lots of sweats and some body aches.

Better than it was though :)

x

hello @iserbrown, Thanks for your advise, yes I actually saw my GP this avo but she wasn't sure what to do, she ended up refusing sleeping pills but giving me a script for Melatonin. Really hope it works.
I guess I've just got to put up with it.

Sounds like you should make an appointment to see the GP

Hi everyone,

I;ve posted elsewhere about this but I'm desperate, does anyone who has had Exemestane know if a side affect is restless leg syndrome throughout ALL the body? 

Last night I had bad sweats, which I can put up with but the restlessness throughout my whole body was horrible, I really couldn't sleep.

I ended up having to have a pain killer ( Polexia) to get to sleep in the end in the wee hours of the morning.

I've texted my nurse about this but haven't heard back PLEASE has anyone any suggestions?
I can't go through this every night  :s

Oh yes, thank you  :)