Forum Discussion
MvB
7 years agoMember
Hey @arpie thanks for the response and best wishes for your own journey in all of this. I'll investigate the CTC testing - sounds interesting. I'm in Sydney and being treated for the last 18 years out of the Sydney Adventist Hospital (the San) in Wahroonga, where everyone has been amazing. But I only last week was referred to an 'Oncologist' having previously been treated primarily by a very experienced surgeon and a Radiation Oncologist. I have also been discussed a few times at Multi-Disciplinary Team Meetings over the last few years - but perhaps the decision to go off Arimidex 18 months ago wasn't the best. But at the time the jury was still out on the benefits of more than 5 years - I think the verdict on this now is clearer. My new Oncologist has been hit with a laundry list of questions given I have had the benefit of dealing with this for almost 20 years now...but even so my learning curve in the past few weeks has escalated as I have had to deal with not just the new recurrence but also so much more info and knowledge on BC types since the last time I had this 7 years ago...my Google searches have been going overtime! It is amazing how much more is understood but also how much more needs to be done. As my surgeon said to me last week..."the understanding on all of this is shifting like the sands of the Sahara"...which is a perfect description. And I am just trying to stay one step ahead of the sand!