Early stage breast cancer #4 (recurrence #3)
Hi everyone,
reaching out to find anyone in a similar boat which I call
the SS "Lucky/Unlucky".
I have been dealing with early stage BC for 18 years now
since an initial DCIS dx in 2001 (1mm in ...
Forum Discussion
@MvB hey there! thanks @Joannie for the tag.
What a story!!! gee!!! I've also had a recurrence but only once, my first diagosis was in 2011 DCIS, so like you very early, I had lumpectomy, clear margins and radiation then tamoxifen. 4yrs later I had a recurrence inspite of all that, in the scar tissue of the lumpectomy. So I had another major lumpectomy, clear margins, no node involvement either. Due to a recurrence though my tumor was 2.5cm within my 1yr visits and Grade 3 Stage 2, ER+ only, so I was automatic chemo in 2015. I did the BRCA gene testing and it was negative. So in early 2017 a year post treatment I had a single mastectomy and diep flap reconstruction. I've just been told Im entering into my 4yrs clear til my next visit in January 2020, so Im very happy as I didnt get this far last time. I was not recommended rads as I had it already and my Onc said they wouldnt give it to me ever again.
For me?? I wouldnt have rads again if I go down this path, purely because it didnt work and I was over treated, it has caused a cascade of problems such as heart palpitations in which I had to have an ablation done. Together with years of constant cramping in the chest front and back.
I'm on Aromasin currently so have been on an AI for 8 yrs now. I also have Prolia injections for bone density and this interacts with the medication giving extra protection. Thats been a god send in itself, Ive never been better, I have 2 specialists that can't speak highly enough of it.
The Oncotype test isn't done as commonly here in Australia, so I haven't had that done.
It is a tough one, because you want to know the percentages for you doing chemo, I admit I didnt want to do it but I did. Faced with the decision again, and this is just for me...Im not sure I would, it is dependent on so many factors and I would have to be well convinced by those percentages.
Being well informed is the best way to tackle it. Wishing you all the best. Hugs M xxx
What a story!!! gee!!! I've also had a recurrence but only once, my first diagosis was in 2011 DCIS, so like you very early, I had lumpectomy, clear margins and radiation then tamoxifen. 4yrs later I had a recurrence inspite of all that, in the scar tissue of the lumpectomy. So I had another major lumpectomy, clear margins, no node involvement either. Due to a recurrence though my tumor was 2.5cm within my 1yr visits and Grade 3 Stage 2, ER+ only, so I was automatic chemo in 2015. I did the BRCA gene testing and it was negative. So in early 2017 a year post treatment I had a single mastectomy and diep flap reconstruction. I've just been told Im entering into my 4yrs clear til my next visit in January 2020, so Im very happy as I didnt get this far last time. I was not recommended rads as I had it already and my Onc said they wouldnt give it to me ever again.
For me?? I wouldnt have rads again if I go down this path, purely because it didnt work and I was over treated, it has caused a cascade of problems such as heart palpitations in which I had to have an ablation done. Together with years of constant cramping in the chest front and back.
I'm on Aromasin currently so have been on an AI for 8 yrs now. I also have Prolia injections for bone density and this interacts with the medication giving extra protection. Thats been a god send in itself, Ive never been better, I have 2 specialists that can't speak highly enough of it.
The Oncotype test isn't done as commonly here in Australia, so I haven't had that done.
It is a tough one, because you want to know the percentages for you doing chemo, I admit I didnt want to do it but I did. Faced with the decision again, and this is just for me...Im not sure I would, it is dependent on so many factors and I would have to be well convinced by those percentages.
Being well informed is the best way to tackle it. Wishing you all the best. Hugs M xxx