So sorry to see you joining us here SunshineViolet​ xx. I hope you are recovering well from your surgery xx
It would be best if you discussed this with your Onc - specially as your surgeon & GP have said you'll not receive it! It isn't really their area of expertise!
Have you actually SEEN an Oncologist yet? They should be able to give you statistics on 'how much benefit' you will receive by either HAVING AI (Aromatase Inhibitors/Hormone Suppression) or NOT having AI! Also, ask them for a printed copy of both.
Can you advise if your DCIS was 'invasive' or not? And was it Hormone Positive? (Estrogen and Progesterone Positive?)
Will you be having reconstruction further down the line? If 'yes' - you could join the Private Reconstruction Group here:https://onlinenetwork.bcna.org.au/closedgroup/choosing-breast-reconstruction
If not, you can join the 'Flat Chat' Private Group here:
Group: Flat Chat - no breast reconstruction | BCNA Online Network
Both groups will have information that may help you into the future.
I had a lumpectomy for Invasive Lobular Cancer (2 spots) and following surgery, I went on to have radiation and Hormone Suppression (for 7 years) and was lucky enough to bypass chemo. (I was on HRT about 10 years earlier & had had a BC scare where I was called back for more intensive scans in Newcastle ... so I stopped it back then too!)
Following my surgery & radiation, I was actually offered a 'clinical trial' of NOT having Hormone Suppression - but I wanted to throw the bus at it, as I'd had friends who'd progressed to Metastatic after a number of years, so I chose to do the hormone suppression.
Take care & wishing you all the best.
