Forum Discussion
50 Replies
- AnonymousThe user and all related content has been deleted.
- RomlaMemberI support @arpie in her suggestion for an empathy button when words don’t come easy but wish to acknowledge a post .Sometimes like/awesome just doesn’t fit.
- FinchMember@Joanie , please don't feel alone , we are all here having started with the same diagnosis and then taken different paths but have the same fears and anxieties . Some people, like me, come and go on this forum, we are quiet and don't contribute much. I'm afraid of saying the wrong thing. Hurting someone's feelings by mistake . I often feel that I lap up all the good advice and stories and don't give a lot back and it worries me. I may be one of those that have read your posts and not responded and if so , I'm sorry to have caused you despondency . I've found sometimes , such as when going through chemo I'm too exhausted , too foggy, too busy with active treatment and getting on with keeping my home life running smoothly to contribute.
I do know that this forum has been invaluable to me and count it as the one thing that has enabled me to move forward positively.
I would like to give you and everyone here the biggest hug . We're all in it together . Please stay . You take care. XXXX - Annie_CMember@kmakm
Yes yes yes.
Into countdown now. Think I was a 6 year old not a 66 year old! - kmakmMember@"Annie C" You and I are going to have a bloody good wongi in a few weeks. I'm looking forward to it! K xox
- Annie_CMember@Joanie
I did not need chemo and I have put radiation in the gun cabinet to use next time. I was advised to take letrazole and for reasons of my own choosing, declined.
I found my breast cancer diagnosis confronting and difficult and very isolating. Not only in a physical setting ( I am very remote) but also emotionally. Not a day goes by do I question whether I have made a good decision. I had / have no one to have a good "wongi" about it with. And the anger I experienced that came with the diagnosis coloured my view of my world and my thoughts of others.
However the warmth and advice I have received on our bcna site has reassured me that I am not an orphan in my thoughts and feelings. Like a lot of women members of bcna I find that my circle of friends in my small community think that I should be "over it". Are we ever "over it"?
I read every discussion topic and post. There is always something to be gained from them.
One of my gripes is the expectation from my community that I be "positive" and "strong". How do they think I have got this far? At least on this site I can think, feel and express exactly what I am experiencing.
I do not always receive a response / reply to my posts but I feel comforted that they have been read.
Please take care and warmest thoughts.
Annie - kmakmMemberNever alone here Joannie. I hope you feel better about this soon. K xox
- arpieMember@Joannie - you are definitely not alone on the forum or invisible/ignored - only 4 of your posts have had less than 10 comments - and none of them have no replies. Some posts have been started many times by many people as well, so using the search button may get answers re side effects of specific drugs/treatments from previous posts and putting a reply there will bring that thread back to the fore for other newbies to jump onto again.
I have been on fishing forums for 15+ years and am well known in kayak fishing circles - and my posts can have thousands of 'looks' - yet only 10+ comments. Most fishing forums do NOT have 'like or dislike' buttons either - so you just know people have read the posts & not bothered replying. I've always found this to be disappointing but not disturbing .... I then realise that I don't always reply to every post that I look at either. ;) We mustn't take this personally or it can do your head in.
We are lucky on BCNA to have the 'Like Awesome LOL' buttons .... cos if you add the number of Likes etc to the number of replies, that increases the 'responses' markedly! ;)
Personally, I reckon we need at least one more button, a 'compassionate' face - to indicate that we 'feel' for the person or are 'with them' going thru the hard bits when we may not be up to adding written response, especially where the 'Like Awesome & LOL' buttons just aren't appropriate to the conversation. Hence, NO response is left at all. :(
@Giovanna_BCNA .... can we consider a 'new button' to indicate compassion/understanding, where Like, Awesome & LOL just aren't appropriate as a button response to a post? (Not necessarily a 'Sad/sorry' face ..... Maybe like this one or something similar? :/ )
Take care out there everyone xxx - AnonymousThe user and all related content has been deleted.