Forum Discussion
50 Replies
- SisterMember@joannie I hate to think that you're feeling isolated on this site and please don't think it's just you who struggles - in that you're definitely not alone. I admit to coming on this forum at times to vent and rage in a safe place where people understand. I also know that, at the moment, after 6 months of chemo, I feel very doom and gloom - I'm hoping very much that this will start to lift as the chemo effects dissipate (and the weather improves!). I find, while it's great to hear the positives and read the funny things, it's also been invaluable to know that my struggles with mood are not just me. And sometimes it is necessary to have a break from the site - I think most of us have done it when things get too much. There's certainly been times too, when I have read posts but been absolutely unable to post comments. Take care.
- AnonymousThe user and all related content has been deleted.
- AnonymousThe user and all related content has been deleted.
- Giovanna_BCNAMemberHello @primek thanks for the message.
Hello @Joannie I have removed the second part of your title as mentioned above. Did you want me to add anything else to the title of your post? - PatsyNMember@Joannie - It's well known that forums are for people to complain rather than rejoice.
When I had my pain patch and wanted to know why I felt so good I found a forum for said patch.
Everyone was complaining so I changed my mind about adding my bit. I seemed too out of place.
I've been on Arimidex for 2 months now (I had no clear nodes anywhere including the back of my neck) and am grateful for the chance it offers me. I still feel like I'm 102 but blame everything on chemo. - primekMemberI just thought a title change might encourage others to read your thread as I think always focussing on the positives helps us to overcome the bad parts at times and its a great idea for a thread.
@Giovanna_BCNA could assist if you would like a change.. - AnonymousThe user and all related content has been deleted.
- primekMemberPS...maybe asking bcna to adjust your tital to remove the moaning sentence might be more compassionate to those who are suffering with terrible side effects.
- primekMemberOk...here are mine.
Letrozole made absolutely no difference to my post menopause symptoms I already had. So I still have hot flushes and a dry netherlands but it's no worse. (It was straight after chemo but it settled as I recovered)
My 15 year survival stats for my particular breast cancer improve by 9% for having the standard treatment of an AI.
Whilst I initially had a lot of discomfort in my ankles (needed to warm up my feet for a bit before standing in the morning or I would literally yell out on standing) and struggling with my internal step when first up...I really can't say I notice it much now at all.
I have some wrist aching days but mainly when its cold. Solved with a panadol.
I went on fish oil which helped my joint pain. I went off due to surgery. I haven't required to return. I believe its my increased exercise with stretching which has helped this. (But who knows. ..maybe my body just adjusted)
I did have a dramatic drop in my bone density....but this was my pre AI test...and was 2 years post menopause. 12 months on an AI has so far shown no significant drop. Hopefully the next one will be the same.
I'm now 2 years on AI. If my bone density is stable I might request the 10 years. As I was node negative at this stage they have said I need only 5. But lets wait until I make it to 5 and what current trends recommend. If I need prolia...so be it. - AnonymousThe user and all related content has been deleted.