Forum Discussion
To laugh or cry.........that is the question...HAHA!
So at 3 weeks post Mastectomy/Diep Flap reconstruction I had about 3 funny episodes with my eyes, I was quite sure it was migraine related, but had these massive blind spots that lasted about 30 mins. Off to the Optometrist I go, Retinas are fine but in 7 months the sight in my right eye has deteriorated rapidly, she said hmmm off to the GP for bloods and test for Diabetes!!!!
OK, so went to GP did bloods and got results today...my sugar levels are fine as I knew they would be.... BUT he then says the liver enzyme is sightly elevated but can be caused from medication as I dont really drink anymore. AND....my cholesterol is HIGH!!! WELL I burst into hysterical laughter!!!!! so much that he was laughing too and didnt even know why!!!! Is this MADNESS???? Woop Woop hahaha
So just another thing cropped up post treatment hahaha!! Im not even worried about it, as Im eating really well and have started exercising again, Im a size 10!!! so not carrying excessive weight but now have to add Krill Oil to my multitude of pills everyday.
I have never laughed so hard in my life....after 6yrs of this roller coaster BC twice...that's my latest?? really??? who cares!!!! hahaha
So on that note Im off to exercise hahahaha
Melinda
OK, so went to GP did bloods and got results today...my sugar levels are fine as I knew they would be.... BUT he then says the liver enzyme is sightly elevated but can be caused from medication as I dont really drink anymore. AND....my cholesterol is HIGH!!! WELL I burst into hysterical laughter!!!!! so much that he was laughing too and didnt even know why!!!! Is this MADNESS???? Woop Woop hahaha
So just another thing cropped up post treatment hahaha!! Im not even worried about it, as Im eating really well and have started exercising again, Im a size 10!!! so not carrying excessive weight but now have to add Krill Oil to my multitude of pills everyday.
I have never laughed so hard in my life....after 6yrs of this roller coaster BC twice...that's my latest?? really??? who cares!!!! hahaha
So on that note Im off to exercise hahahaha
Melinda
27 Replies
- Thanks @iserbrown yes I think its the combination of used Tamoxifen 4yrs and been on Arimidex over 1yr, I believe all of it has stemmed from medication. Thing is I think we just put up with alot of things because we dont like the thought of not taking them. So I want to sit down and talk to the Oncologist, though I know it will be downplayed. I can just not take them at all, so we'll see. x M
- @melclarity the link below speaks of eye problems on Tamoxifen. Hope it helps
http://www.mayoclinic.org/drugs-supplements/tamoxifen-oral-route/side-effects/drg-20066208 - @iserbrown exactly right i imagine they are false readings so have to see my Oncologist. There are too many coincidences that i could have all these problems that are specific to Arimidex. Im quite sure she said my deterioration in right eye is not reversible. So im pretty annoyed now. Ill give Femara a go otherwise not sure x i can handle side effects but not this damaging its ridiculous!
- So you have to wonder is that a false reading or a real reading of your cholesterol when it is perhaps a cause and effect of treatment? If you go off treatment does it subside back to normal levels or is it in damage mode and needs additional medication. The bonus extras that we accumulate and they wonder why some days when someone says you look good you just smile but inwardly you want to let out expletives!
Hoping your eye problems are sorted and back to normal asap! Take care - Hey @brightspace ive been on Arimidex 15 months prior to that Tamoxifen for 4yrs. Ive only suffered all of these things post chemo and on Arimidex. My Oncologist said he'd change it if i kept a diary off it 6 weeks and I did. No GP put me on nothing said watch my diet wtf? Nothing wrong with it am furious moreso over eyesight probs...then osteoporosis and now cholesterol hmmmm femara here i come lol x
- Hi mel everyone is different with SE
did gp recommend statin for lowering cholesterol.
i take low dose statin and was already on low dose blood pressure tablets .before starting AItherapy...i will be asking gp for cholesterol test as i know the oncologist has not asked for this test. Im on leterzole with minimal SE so far - Brenda, its just interesting to me as Nikki pointed out since Ive been on Arimidex 15 months, I have Osteoporosis in my spine, my liver enzyme is up and he said due to medication! my cholesterol is high, and this was all in a bid to see if I had diabetes to explain the sight deterioration in my right eye. I dont have high sugar at all hmmm....but high cholesterol can cause eye problems as can Arimidex, its all there. Its not just a coincidence none of these things I had prior to chemo or Arimidex..I couldnt possibly have the combination bones? liver? eyes? cholesterol? Im calling Oncologist Monday and going in asap I cant reverse my vision....Im not continuing this meds based on all of these things...how ridiculous!
- High cholesterol just means you are a good do'er doesn't it? Its a graziers term as some cattle can fatten on little pasture. Maybe your treats need to be regulated? That's a bummer.
Wouldn't be overly concerned about the liver unless you start looking a bit yellow. My husband sometimes does but its a natural feature of his particular blood type and not serious. - Thanks Nikki!! OMG Ive never looked at it all before, makes alot of sense for me, uuugh!!! hopefully a chat with the Oncologist can get to a better solution :wink: x
- And @melclarity check this 2011 research paper out: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3205820/
xx
