Prescription ARIMIDEX is only for postmenopausal women. ARIMIDEX should not be taken if you are pregnant because it may harm your unborn child. Do not take ARIMIDEX if you are allergic to any of its ingredients
Based on information from a study in patients with early breast cancer, women with a history of blockages in heart arteries (ischemic heart disease) who take ARIMIDEX may have a slight increase in this type of heart disease compared to similar patients who take tamoxifen
ARIMIDEX can cause bone softening/weakening (osteoporosis) increasing the chance of fractures. In a clinical study in early breast cancer, there were more fractures (including fractures of the spine, hip, and wrist) with ARIMIDEX (10%) than with tamoxifen (7%)
In a clinical study in early breast cancer, some patients taking ARIMIDEX had an increase in cholesterol. Skin reactions, allergic reactions, and changes in blood tests of liver function have also been reported
This is why my liver enzyme was altered too!!!! I have high cholesterol!!!! and Osteoporosis!!!! all things I NEVER HAD!!! ","board":{"__ref":"Forum:board:healthy-eating"},"conversation":{"__ref":"Conversation:conversation:135132"},"author":{"__typename":"User","login":"melclarity"},"postTime":"2017-04-21T02:29:28.000-07:00","kudosSumWeight":0}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwz","node":{"__typename":"ForumReplyMessage","uid":135135,"body":"F%*k cholesterol. Really. This stuff will drive you mental. It may, or may not, be one of the greatest medical misdirections of our time. Fat fools who live on pies are fine, skinny minnies are about to stroke out. Phhffft. Have butter on everything, just in case.","board":{"__ref":"Forum:board:healthy-eating"},"conversation":{"__ref":"Conversation:conversation:135132"},"author":{"__typename":"User","login":"Zoffiel"},"postTime":"2017-04-21T02:34:17.000-07:00","kudosSumWeight":0}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw0","node":{"__typename":"ForumReplyMessage","uid":135136,"body":"@Zoffiel
Marg Its insane, my liver enzymes were up too...its all in Arimidex!!! thats BS!!! didnt make sense how I could! does now!! already struggling with the pain and after doing the diary for the Oncologist, I am ringing and pulling my appt forward, this is crap!! Not taking it anymore...give me something else...what a croc!
Another insane thing happened today, I rang a Breast Care Nurse about a lump in my reconstructed breast, she's like ohhh better get that checked out! We'd have to do a needle biopsy, Im like WTF!!!??? its stomach fat from 6 weeks ago. Is it just me?? or are there alot of crazy people walking around in the twilight zone?? HAHAHA","board":{"__ref":"Forum:board:healthy-eating"},"conversation":{"__ref":"Conversation:conversation:135132"},"author":{"__typename":"User","login":"melclarity"},"postTime":"2017-04-21T02:45:13.000-07:00","kudosSumWeight":0}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw1","node":{"__typename":"ForumReplyMessage","uid":135137,"body":"There isn't anything else. We wanted something better than Tamoxifen. Well, be careful what you wish for. Tamoxifen didn't worry me, still had my periods, I hardly noticed I was taking it. That's probably because it wasn't working. I'm test driving Femara now and it's up to us to decide what we will tolerate and which risks we will take. Risk management 101.
The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor.
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laugh or cry.........that is the question...HAHA!","id":"message:135132","revisionNum":1,"repliesCount":27,"author":{"__ref":"User:user:18897"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:healthy-eating"},"conversation":{"__ref":"Conversation:conversation:135132"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:135132"},"body":"So at 3 weeks post Mastectomy/Diep Flap reconstruction I had about 3 funny episodes with my eyes, I was quite sure it was migraine related, but had these massive blind spots that lasted about 30 mins. Off to the Optometrist I go, Retinas are fine but in 7 months the sight in my right eye has deteriorated rapidly, she said hmmm off to the GP for bloods and test for Diabetes!!!!
OK, so went to GP did bloods and got results today...my sugar levels are fine as I knew they would be.... BUT he then says the liver enzyme is sightly elevated but can be caused from medication as I dont really drink anymore. AND....my cholesterol is HIGH!!! WELL I burst into hysterical laughter!!!!! so much that he was laughing too and didnt even know why!!!! Is this MADNESS???? Woop Woop hahaha
So just another thing cropped up post treatment hahaha!! Im not even worried about it, as Im eating really well and have started exercising again, Im a size 10!!! so not carrying excessive weight but now have to add Krill Oil to my multitude of pills everyday.
I have never laughed so hard in my life....after 6yrs of this roller coaster BC twice...that's my latest?? really??? who cares!!!! hahaha
So on that note Im off to exercise hahahaha
Melinda ","body@stringLength":"1303","rawBody":"So at 3 weeks post Mastectomy/Diep Flap reconstruction I had about 3 funny episodes with my eyes, I was quite sure it was migraine related, but had these massive blind spots that lasted about 30 mins. Off to the Optometrist I go, Retinas are fine but in 7 months the sight in my right eye has deteriorated rapidly, she said hmmm off to the GP for bloods and test for Diabetes!!!!
OK, so went to GP did bloods and got results today...my sugar levels are fine as I knew they would be.... BUT he then says the liver enzyme is sightly elevated but can be caused from medication as I dont really drink anymore. AND....my cholesterol is HIGH!!! WELL I burst into hysterical laughter!!!!! so much that he was laughing too and didnt even know why!!!! Is this MADNESS???? Woop Woop hahaha
So just another thing cropped up post treatment hahaha!! Im not even worried about it, as Im eating really well and have started exercising again, Im a size 10!!! so not carrying excessive weight but now have to add Krill Oil to my multitude of pills everyday.
I have never laughed so hard in my life....after 6yrs of this roller coaster BC twice...that's my latest?? really??? who cares!!!! hahaha
So on that note Im off to exercise hahahaha
Melinda 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who specialises in breast cancer","conversation":{"__ref":"Conversation:conversation:138695"},"id":"message:138695","revisionNum":1,"uid":138695,"depth":0,"board":{"__ref":"Forum:board:healthy-eating"},"author":{"__ref":"User:user:1393"},"metrics":{"__typename":"MessageMetrics","views":174},"postTime":"2023-09-04T22:00:44.000-07:00","lastPublishTime":"2023-09-04T22:00:44.000-07:00","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})":"Was wondering if anyone can please recommend a dietitian who specialises in breast cancer. 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What are your thoughts. And what about diet. I'm thinking I might try alkaline diet. I think my current diet is way too acidic. And wine? Does that have to go? 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I suffer from gluten intolerance and have found that the bread I usually make has become unpalatable to me since starting chemo. 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What seems far more beneficial is them devising a test to see if the particular medication is working as in 1/3 of cases it doesnt as its learnt to adapt and evolve. Only Then it would be more successful. Would have been helpful for me as maybe had I known tamoxifen wasnt working i could have been on a different one. Hopefully this is their next step.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":0,"repliesCount":0,"postTime":"2017-05-03T03:04:20.000-07:00","lastPublishTime":"2017-05-03T03:04:20.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:lifestyle-and-wellbeing/community:nkyiu94732board:healthy-eating/message:135132/message:135159","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"681","rawBody":"Kath definitely an interesting read,
What seems far more beneficial is them devising a test to see if the particular medication is working as in 1/3 of cases it doesnt as its learnt to adapt and evolve. Only Then it would be more successful. Would have been helpful for me as maybe had I known tamoxifen wasnt working i could have been on a different one. Hopefully this is their next step. ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:135159_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:18211":{"__typename":"User","id":"user:18211","uid":18211,"login":"primek","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2015-12-26T20:12:00.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/704/pWPYOMZPHDHNA.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:18211"},"ModerationData:moderation_data:135158":{"__typename":"ModerationData","id":"moderation_data:135158","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:135158":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:18211"},"id":"message:135158","revisionNum":1,"uid":135158,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:healthy-eating"},"parent":{"__ref":"ForumTopicMessage:message:135132"},"conversation":{"__ref":"Conversation:conversation:135132"},"subject":"Re: To laugh or cry.........that is the question...HAHA!","moderationData":{"__ref":"ModerationData:moderation_data:135158"},"body":"This makes interesting reading and why now 10 years instead of 5...or why it may be offered. As we know though cancer can adapt so it's always possible with recurrence this is what happened and why recurrence has happened.
http://www.breastcancer.org/research-news/20130604 ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2017-05-03T02:48:02.000-07:00","lastPublishTime":"2017-05-03T02:48:02.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:lifestyle-and-wellbeing/community:nkyiu94732board:healthy-eating/message:135132/message:135158","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"410","rawBody":"This makes interesting reading and why now 10 years instead of 5...or why it may be offered. As we know though cancer can adapt so it's always possible with recurrence this is what happened and why recurrence has happened.
http://www.breastcancer.org/research-news/20130604 ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:135158_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:17306":{"__typename":"User","id":"user:17306","uid":17306,"login":"iserbrown","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2015-07-12T16:59:09.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/images/dS0xNzMwNi1pSjI3dGM?image-coordinates=29%2C0%2C562%2C532"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:17306"},"ModerationData:moderation_data:135157":{"__typename":"ModerationData","id":"moderation_data:135157","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:135157":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:17306"},"id":"message:135157","revisionNum":1,"uid":135157,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:healthy-eating"},"parent":{"__ref":"ForumTopicMessage:message:135132"},"conversation":{"__ref":"Conversation:conversation:135132"},"subject":"Re: To laugh or cry.........that is the question...HAHA!","moderationData":{"__ref":"ModerationData:moderation_data:135157"},"body":"
The impact that on-going issues have on our life is something that doctors seem to underestimate or almost downplay. But for us it is about achieving the best life we can, not just staying alive but really living again. Medications are not necessarily the best answer for everyone. I guess all we can do is find out as much information as possible, ask questions about our own particular situation and then go with what feels right for us.
\n
\n@Deanne - what a powerful sentence or two you have said here It is so true, it keeps on giving in that the side effects have such an impact and are not given enough credence, or at least that is the impression we have when we are in this predicament. Thank you for an thoughtful response to Melinda. Take care and wishing you better readings with your cholesterol xx ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2017-05-02T17:59:57.000-07:00","lastPublishTime":"2017-05-02T17:59:57.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:lifestyle-and-wellbeing/community:nkyiu94732board:healthy-eating/message:135132/message:135157","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"995","rawBody":"
The impact that on-going issues have on our life is something that doctors seem to underestimate or almost downplay. But for us it is about achieving the best life we can, not just staying alive but really living again. Medications are not necessarily the best answer for everyone. I guess all we can do is find out as much information as possible, ask questions about our own particular situation and then go with what feels right for us.
\n
\n@Deanne - what a powerful sentence or two you have said here It is so true, it keeps on giving in that the side effects have such an impact and are not given enough credence, or at least that is the impression we have when we are in this predicament. Thank you for an thoughtful response to Melinda. Take care and wishing you better readings with your cholesterol xx ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:135157_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:135156":{"__typename":"ModerationData","id":"moderation_data:135156","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:135156":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:18897"},"id":"message:135156","revisionNum":1,"uid":135156,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:healthy-eating"},"parent":{"__ref":"ForumTopicMessage:message:135132"},"conversation":{"__ref":"Conversation:conversation:135132"},"subject":"Re: To laugh or cry.........that is the question...HAHA!","moderationData":{"__ref":"ModerationData:moderation_data:135156"},"body":"@Deanne Thank You so much for your detailed response! I absolutely agree with you, and I JUST REALISED I have 2 Prolia injections a year, maybe thats why my Cholesterol was high!!! UUUGH!!! I was fine pre BC too so frustrating and I like working with my Exercise Physiologist, its been fantastic, so im looking forward to doing so much more. I love the idea of the weight bearing, I used to do it when I was young. There are ways to manage it you are right. So I wonder now whether 4yrs on Tamoxifen killed my bones!!! then had a recurrence and Chemo really killed them then!!! It does get difficult when youve had more trouble from the treatments than the actual BC and I know depends how you look at it. But it really messes with your head doesnt it?? Onward we go! xo","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2017-05-02T17:55:10.000-07:00","lastPublishTime":"2017-05-02T17:55:10.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:lifestyle-and-wellbeing/community:nkyiu94732board:healthy-eating/message:135132/message:135156","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"770","rawBody":"@Deanne Thank You so much for your detailed response! I absolutely agree with you, and I JUST REALISED I have 2 Prolia injections a year, maybe thats why my Cholesterol was high!!! UUUGH!!! I was fine pre BC too so frustrating and I like working with my Exercise Physiologist, its been fantastic, so im looking forward to doing so much more. I love the idea of the weight bearing, I used to do it when I was young. There are ways to manage it you are right. So I wonder now whether 4yrs on Tamoxifen killed my bones!!! then had a recurrence and Chemo really killed them then!!! It does get difficult when youve had more trouble from the treatments than the actual BC and I know depends how you look at it. But it really messes with your head doesnt it?? Onward we go! xo","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:135156_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:11251":{"__typename":"User","id":"user:11251","uid":11251,"login":"Deanne","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2013-05-14T11:26:19.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/796/p0Y6RTL3WBLK1.jpeg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:11251"},"ModerationData:moderation_data:135155":{"__typename":"ModerationData","id":"moderation_data:135155","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:135155":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:11251"},"id":"message:135155","revisionNum":1,"uid":135155,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:healthy-eating"},"parent":{"__ref":"ForumTopicMessage:message:135132"},"conversation":{"__ref":"Conversation:conversation:135132"},"subject":"Re: To laugh or cry.........that is the question...HAHA!","moderationData":{"__ref":"ModerationData:moderation_data:135155"},"body":"Quality of life is important to us all. As individuals we will have different reactions to treatments and for me it has been important to find a balance between recommended medications and quality of life. I am fortunate to have had good general health before bc and have preferred to try and counteract side effects through diet and exercise wherever possible.
I understand that Femara has the potential to make a big difference to my chance of recurrence (different for each of us depending on individual pathology) so I try to find ways to limit its negative effects on my quality of life.
Every medication has potential side effects. When it was discovered that I had bone density issues after being on Tamoxifen (this has negative bone effects for pre-menopausal women, which it turned out I was after chemo effects wore off) and then Femara (after ovary removal), it was recommended I start Prolia.
Side effects of Prolia include high cholesterol (maybe one side effect too many for me) and potentially reduced immunity amongst other things such as actual increased chance of fractures if you stop Prolia (the mind boggles ??). I searched for alternatives to medication and found a research based weightlifting program. For me this felt a better option and after just 6 months on this program my bone density is improving.
My cholestrol is already higher than it was due to Femara, but I seem to be managing this with diet and exercise too. Fingers crossed this continues.
I guess I have learned to ask questions and do my own research rather than just take medications that appear to offer \"improved health outcomes\". Interestingly my doctors have all been supportive of my medication alternatives (diet and exercise based) but I have had to do the research myself and be prepared to commit to on-going programs.
For me this gives me a balance between medication (Femara) and quality of life that I feel ok with. I agree that quality of life is something we all deserve and want after 'active' treatment ends. The impact that on-going issues have on our life is something that doctors seem to underestimate or almost downplay. But for us it is about achieving the best life we can, not just staying alive but really living again. Medications are not necessarily the best answer for everyone. I guess all we can do is find out as much information as possible, ask questions about our own particular situation and then go with what feels right for us.
Good luck with your oncologist visit, @melclarity. I hope you find a way to achieve your best quality of life. xxx ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2017-05-02T17:45:24.000-07:00","lastPublishTime":"2017-05-02T17:45:24.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:lifestyle-and-wellbeing/community:nkyiu94732board:healthy-eating/message:135132/message:135155","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"2667","rawBody":"Quality of life is important to us all. As individuals we will have different reactions to treatments and for me it has been important to find a balance between recommended medications and quality of life. I am fortunate to have had good general health before bc and have preferred to try and counteract side effects through diet and exercise wherever possible.
I understand that Femara has the potential to make a big difference to my chance of recurrence (different for each of us depending on individual pathology) so I try to find ways to limit its negative effects on my quality of life.
Every medication has potential side effects. When it was discovered that I had bone density issues after being on Tamoxifen (this has negative bone effects for pre-menopausal women, which it turned out I was after chemo effects wore off) and then Femara (after ovary removal), it was recommended I start Prolia.
Side effects of Prolia include high cholesterol (maybe one side effect too many for me) and potentially reduced immunity amongst other things such as actual increased chance of fractures if you stop Prolia (the mind boggles ??). I searched for alternatives to medication and found a research based weightlifting program. For me this felt a better option and after just 6 months on this program my bone density is improving.
My cholestrol is already higher than it was due to Femara, but I seem to be managing this with diet and exercise too. Fingers crossed this continues.
I guess I have learned to ask questions and do my own research rather than just take medications that appear to offer \"improved health outcomes\". Interestingly my doctors have all been supportive of my medication alternatives (diet and exercise based) but I have had to do the research myself and be prepared to commit to on-going programs.
For me this gives me a balance between medication (Femara) and quality of life that I feel ok with. I agree that quality of life is something we all deserve and want after 'active' treatment ends. The impact that on-going issues have on our life is something that doctors seem to underestimate or almost downplay. But for us it is about achieving the best life we can, not just staying alive but really living again. Medications are not necessarily the best answer for everyone. I guess all we can do is find out as much information as possible, ask questions about our own particular situation and then go with what feels right for us.
Good luck with your oncologist visit, @melclarity. I hope you find a way to achieve your best quality of life. xxx ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:135155_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:135154":{"__typename":"ModerationData","id":"moderation_data:135154","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:135154":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:18897"},"id":"message:135154","revisionNum":1,"uid":135154,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:healthy-eating"},"parent":{"__ref":"ForumTopicMessage:message:135132"},"conversation":{"__ref":"Conversation:conversation:135132"},"subject":"Re: To laugh or cry.........that is the question...HAHA!","moderationData":{"__ref":"ModerationData:moderation_data:135154"},"body":"@PaulaN I completely understand your thinking actually. For me I had a false sense of security to be hit 4yrs later, as so many women theres no consistency so random, a year later 5 or 10 even. But like you Id sooner face it earlier than later. I sort of wonder, you take the pill for 5yrs generally but what does that mean after that? always wondered that, to me if they wanted prevention why isnt there a medication that protects for life? Who knows so complex, but am over the reduced quality of life since treatment. This phase of my life is OVER! so onward we go in pursuit of a reasonable health and life. :) ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2017-05-02T13:15:20.000-07:00","lastPublishTime":"2017-05-02T13:15:20.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:lifestyle-and-wellbeing/community:nkyiu94732board:healthy-eating/message:135132/message:135154","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"620","rawBody":"@PaulaN I completely understand your thinking actually. For me I had a false sense of security to be hit 4yrs later, as so many women theres no consistency so random, a year later 5 or 10 even. But like you Id sooner face it earlier than later. I sort of wonder, you take the pill for 5yrs generally but what does that mean after that? always wondered that, to me if they wanted prevention why isnt there a medication that protects for life? Who knows so complex, but am over the reduced quality of life since treatment. This phase of my life is OVER! so onward we go in pursuit of a reasonable health and life. :) ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:135154_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:18345":{"__typename":"User","id":"user:18345","uid":18345,"login":"PaulaN","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2016-01-29T06:42:26.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/avatars/p4a5b4a902a32fc7c6de5ee9a737e02f1.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:18345"},"ModerationData:moderation_data:135153":{"__typename":"ModerationData","id":"moderation_data:135153","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:135153":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:18345"},"id":"message:135153","revisionNum":1,"uid":135153,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:healthy-eating"},"parent":{"__ref":"ForumTopicMessage:message:135132"},"conversation":{"__ref":"Conversation:conversation:135132"},"subject":"Re: To laugh or cry.........that is the question...HAHA!","moderationData":{"__ref":"ModerationData:moderation_data:135153"},"body":"Hi melclarity I figured if I was going to have a recurrence without the medication I'd rather fight it sooner rather than later but that's just me.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"153","kudosSumWeight":0,"repliesCount":0,"postTime":"2017-05-02T06:44:57.000-07:00","lastPublishTime":"2017-05-02T06:44:57.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:lifestyle-and-wellbeing/community:nkyiu94732board:healthy-eating/message:135132/message:135153","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"153","rawBody":"Hi melclarity I figured if I was going to have a recurrence without the medication I'd rather fight it sooner rather than later but that's just me.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:135153_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:135152":{"__typename":"ModerationData","id":"moderation_data:135152","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:135152":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:18897"},"id":"message:135152","revisionNum":1,"uid":135152,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:healthy-eating"},"parent":{"__ref":"ForumTopicMessage:message:135132"},"conversation":{"__ref":"Conversation:conversation:135132"},"subject":"Re: To laugh or cry.........that is the question...HAHA!","moderationData":{"__ref":"ModerationData:moderation_data:135152"},"body":"@iserbrown Well a blood test revealed I do not have Diabetes which is what the Optometrist thought may be the culprit. So no answer. I have my Oncologist visit in a few weeks, so we shall see what he has to say, I think he'll be non committal ;)
Aaah @PaulaN well I may be following suit LOL, Im not fussed to be honest as I said, Tamoxifen didnt work anyway, I still had a recurrence so why should I have faith in Arimidex or Femara?? ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2017-05-01T23:12:16.000-07:00","lastPublishTime":"2017-05-01T23:12:16.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:lifestyle-and-wellbeing/community:nkyiu94732board:healthy-eating/message:135132/message:135152","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"458","rawBody":"@iserbrown Well a blood test revealed I do not have Diabetes which is what the Optometrist thought may be the culprit. So no answer. I have my Oncologist visit in a few weeks, so we shall see what he has to say, I think he'll be non committal ;)
Aaah @PaulaN well I may be following suit LOL, Im not fussed to be honest as I said, Tamoxifen didnt work anyway, I still had a recurrence so why should I have faith in Arimidex or Femara?? ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:135152_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:135151":{"__typename":"ModerationData","id":"moderation_data:135151","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:135151":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:18345"},"id":"message:135151","revisionNum":1,"uid":135151,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:healthy-eating"},"parent":{"__ref":"ForumTopicMessage:message:135132"},"conversation":{"__ref":"Conversation:conversation:135132"},"subject":"Re: To laugh or cry.........that is the question...HAHA!","moderationData":{"__ref":"ModerationData:moderation_data:135151"},"body":"Hi I've been on Arimidex, Femera & Tamoxifen. I had to go off all of them due to side effects. We're all different, I guess I'm just one of the lucky ones LOL Paula","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"169","kudosSumWeight":0,"repliesCount":0,"postTime":"2017-05-01T22:29:18.000-07:00","lastPublishTime":"2017-05-01T22:29:18.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:lifestyle-and-wellbeing/community:nkyiu94732board:healthy-eating/message:135132/message:135151","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"173","rawBody":"Hi I've been on Arimidex, Femera & Tamoxifen. I had to go off all of them due to side effects. We're all different, I guess I'm just one of the lucky ones LOL Paula","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:135151_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:135150":{"__typename":"ModerationData","id":"moderation_data:135150","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:135150":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:17306"},"id":"message:135150","revisionNum":1,"uid":135150,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:healthy-eating"},"parent":{"__ref":"ForumTopicMessage:message:135132"},"conversation":{"__ref":"Conversation:conversation:135132"},"subject":"Re: To laugh or cry.........that is the question...HAHA!","moderationData":{"__ref":"ModerationData:moderation_data:135150"},"body":"@melclarity And they wonder why we get a little bit nutty! Yes it doesn't happen to everyone however the odds are not good! Here's hoping your troubles are reversible in that off the medication and onto something that is more suitable as the end game is to be rid of and not return............., for you the script wasn't quite right, recurrence...........it would seem the cure is more difficult than most of us would've thought!
Take care and let us know how you go with the diagnosis around your eyes.
For me scanxiety this week is heightened as I go for my review. Yes I am fine but it is the been there done that don't particularly want to do it again until the appointment is over and I can go phew! I will keep busy
Take care and sending you a virtual hug xx","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"213","kudosSumWeight":0,"repliesCount":0,"postTime":"2017-04-25T16:48:30.000-07:00","lastPublishTime":"2017-04-25T16:48:30.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:lifestyle-and-wellbeing/community:nkyiu94732board:healthy-eating/message:135132/message:135150","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"889","rawBody":"@melclarity And they wonder why we get a little bit nutty! Yes it doesn't happen to everyone however the odds are not good! Here's hoping your troubles are reversible in that off the medication and onto something that is more suitable as the end game is to be rid of and not return............., for you the script wasn't quite right, recurrence...........it would seem the cure is more difficult than most of us would've thought!
Take care and let us know how you go with the diagnosis around your eyes.
For me scanxiety this week is heightened as I go for my review. Yes I am fine but it is the been there done that don't particularly want to do it again until the appointment is over and I can go phew! I will keep busy
Take care and sending you a virtual hug xx","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:135150_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"CachedAsset:text:en_US-components/community/NavbarDropdownToggle-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/community/NavbarDropdownToggle-1742938040000","value":{"ariaLabelClosed":"Press the down arrow to open the menu"},"localOverride":false},"CachedAsset:text:en_US-components/messages/EscalatedMessageBanner-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/messages/EscalatedMessageBanner-1742938040000","value":{"escalationMessage":"Escalated to Salesforce by {username} on {date}","viewDetails":"View Details","modalTitle":"Case Details","escalatedBy":"Escalated by: ","escalatedOn":"Escalated on: ","caseNumber":"Case Number: ","status":"Status: ","lastUpdateDate":"Last Update: ","automaticEscalation":"automatic escalation","anonymous":"Anonymous"},"localOverride":false},"CachedAsset:text:en_US-components/users/UserLink-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/users/UserLink-1742938040000","value":{"authorName":"View Profile: {author}","anonymous":"Anonymous"},"localOverride":false},"CachedAsset:text:en_US-shared/client/components/users/UserRank-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-shared/client/components/users/UserRank-1742938040000","value":{"rankName":"{rankName}","userRank":"Author rank {rankName}"},"localOverride":false},"CachedAsset:text:en_US-components/messages/MessageTime-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/messages/MessageTime-1742938040000","value":{"postTime":"Published: {time}","lastPublishTime":"Last Update: {time}","conversation.lastPostingActivityTime":"Last posting activity time: {time}","conversation.lastPostTime":"Last post time: {time}","moderationData.rejectTime":"Rejected time: {time}"},"localOverride":false},"CachedAsset:text:en_US-components/messages/MessageSolvedBadge-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/messages/MessageSolvedBadge-1742938040000","value":{"solved":"Solved"},"localOverride":false},"CachedAsset:text:en_US-components/messages/MessageSubject-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/messages/MessageSubject-1742938040000","value":{"noSubject":"(no subject)"},"localOverride":false},"CachedAsset:text:en_US-components/messages/MessageBody-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/messages/MessageBody-1742938040000","value":{"showMessageBody":"Show More","mentionsErrorTitle":"{mentionsType, select, board {Board} user {User} message {Message} other {}} No Longer Available","mentionsErrorMessage":"The {mentionsType} you are trying to view has been removed from the community.","videoProcessing":"Video is being processed. 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